Adequacy of Online Patient Information Resources on Gout and Potentially Curative Urate-Lowering Treatment

Jimenez-Li�an, L. M.; Edwards, L.; Abhishek, A.; Doherty, Michael

Abstract

© 2016, American College of Rheumatology Objective: To assess the content and readability of online patient information resources against the current understanding of gout. Methods: An online survey was undertaken using Google UK, USA, Australia, and Canada. Information was assessed for content and accuracy on 19 key points regarding core content for gout patient information resources. Readability was assessed using the Flesch-Kincaid Reading Ease score. Fifteen randomly selected websites were reviewed by a blinded second observer. Results: A total of 85 websites were selected. More than 50% of the websites provided no information or had inaccuracies regarding the pathogenesis of gout. Most websites contained information on dietary and lifestyle modifications for treating gout and did not emphasize urate-lowering therapy (ULT) and its potential for cure. Over 75% of the websites had no/inaccurate information on the role of ULT or prophylaxis for preventing gout attacks on starting ULT. The majority of websites were difficult to read, with information in 68% of the websites rated at least fairly difficult. Conclusion: Only a few web-based patient information resources provide accurate and easy-to-read information on gout. This study will help physicians direct patients to currently reliable resources, but there is a need to improve many web-based patient information resources, which at present act as barriers to care.

• Journal Article Type: Article
• Acceptance Date: Jun 28, 2016
• Online Publication Date: Jul 7, 2016
• Publication Date: 2017-05
• Deposit Date: Jun 7, 2021
• Journal: Arthritis Care and Research
• Print ISSN: 2151-464X
• Electronic ISSN: 2151-4658
• Publisher: Wiley
• Peer Reviewed: Peer Reviewed
• Volume: 69
• Issue: 5
• Pages: 748-752
• DOI: https://doi.org/10.1002/acr.22981
• Public URL: https://nottingham-repository.worktribe.com/output/3237274
• Publisher URL: https://onlinelibrary.wiley.com/doi/full/10.1002/acr.22981