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All Outputs (115)

Online social support for Complex Regional Pain Syndrome: a content analysis of support exchanges within a newly launched discussion forum (2015)
Journal Article

Complex Regional Pain Syndrome is a debilitating illness characterised by unexplained pain that is disproportionate to any initiating event. Individuals living with CRPS can become socially isolated, and online support communities may provide them wi... Read More about Online social support for Complex Regional Pain Syndrome: a content analysis of support exchanges within a newly launched discussion forum.

Co-creation of information leaflets to meet the support needs of people living with Complex Regional Pain Syndrome (CRPS) through innovative use of wiki technology (2015)
Journal Article

Objective: People living with Complex Regional Pain Syndrome (CRPS) experience frustration with the lack of knowledge and understanding of CRPS as a pain condition. We report on our attempt to address this issue. Method: People living with CRPS t... Read More about Co-creation of information leaflets to meet the support needs of people living with Complex Regional Pain Syndrome (CRPS) through innovative use of wiki technology.

The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities: a qualitative study (2014)
Journal Article

Research suggests that the uptake of cervical screening by women with intellectual disabilities (commonly known as learning disabilities within UK policy frameworks, practice areas and health services) is poor compared to women without intellectual d... Read More about The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities: a qualitative study.

A qualitative investigation of the impact of peer to peer online support for women living with Polycystic Ovary Syndrome (2013)
Journal Article

Background: Polycystic Ovary Syndrome is a common, chronic condition which affects women living with the condition both physically and psychologically. Social support may be beneficial to sufferers in coping with chronic conditions and the Internet i... Read More about A qualitative investigation of the impact of peer to peer online support for women living with Polycystic Ovary Syndrome.

Are online support groups always beneficial? A qualitative exploration of the empowering and disempowering processes of participation within HIV/AIDS-related online support groups (2013)
Journal Article

Background: Human immunodeficiency virus/acquired immunodeficiency syndrome (HIV/AIDS) is one of the leading concerns in healthcare. Individuals living with HIV/AIDS are often confronted with tremendous physical and psychosocial challenges. Online su... Read More about Are online support groups always beneficial? A qualitative exploration of the empowering and disempowering processes of participation within HIV/AIDS-related online support groups.

How do online patient support communities affect the experience of inflammatory bowel disease?: an online survey (2013)
Journal Article

Objective: To explore how participation in an online support community may impact upon the experience of inflammatory bowel disease (IBD). Design: An online survey. Setting: Study participants recruited through 35 IBD online communities.... Read More about How do online patient support communities affect the experience of inflammatory bowel disease?: an online survey.

Sharing, supporting and sobriety: A qualitative analysis of messages posted to alcohol-related online discussion forums in the United Kingdom (2013)
Journal Article

Background: In recent years there has been an exponential growth in the number of people accessing online discussion forums for information, advice and support in relation to a range of both acute and chronic health issues. However, there has been li... Read More about Sharing, supporting and sobriety: A qualitative analysis of messages posted to alcohol-related online discussion forums in the United Kingdom.

Coming to terms with permanent involuntary childlessness: A phenomenological analysis of bulletin board postings (2013)
Journal Article

Little is known about the role that online support communities play in the lives of women faced with permanent involuntary childlessness. To understand the experiences of these women, this study conducted a thematic analysis of messages downloaded fr... Read More about Coming to terms with permanent involuntary childlessness: A phenomenological analysis of bulletin board postings.

Families affected by childhood cancer: An analysis of the provision of social support within online support groups (2012)
Journal Article

Background With increasing access to the Internet, there are new opportunities available to families to seek information, advice and support about childhood cancer online. Methods A total of 487 messages were retrieved from three childhood cancer onl... Read More about Families affected by childhood cancer: An analysis of the provision of social support within online support groups.

A thematic analysis of patient communication in Parkinson's disease online support group discussion forums (2011)
Journal Article

Online support groups have become a popular source of information, advice and support for individuals living with a range of health conditions. However, research has not commonly focused on patients living with Parkinson's disease and their use of on... Read More about A thematic analysis of patient communication in Parkinson's disease online support group discussion forums.