There is a high prevalence of frailty and cognitive impairment within care home population. These wide-ranging experiences and needs impact on residents’ quality of life. Therefore, measuring Quality of Life (QOL) in residents as part of routine practice could help inform care decisions. This review aims to describe how QOL tools used in care homes have been developed, to describe the extent to which these are grounded in the care home experience, the extent to which the concerns of residents, families and staff are addressed by existing tools, and/or the extent to which these remain unaddressed.
This review will follow the Joanna Briggs Institute (JBI) guidelines for conducting scoping reviews. All published literature will be searched using bibliographic databases (MEDLINE, EMBASE, PsychINFO, CINAHL, and COSMIN database of systematic review of outcome measurement instruments) and grey literature will be searched using OpenGrey and social care online databases.
Studies will be selected for inclusion based on population- individuals aged 65 years and above; concept- all QOL tools both generic and dementia-specific used in care homes regardless of the context they have been developed for; and context- care homes- both residential and nursing homes with or without dementia care in any country. Also, reference lists of reviews and included studies will be carried out to identify additional relevant studies. Only papers written in English will be included. Conference abstracts, editorial and commentary articles will be excluded. Articles will be independently screened (at both title/abstract and full text stages) for eligibility by two reviewers. Any disagreement will be resolved by a third reviewer.
Data will be extracted, summarised descriptively and presented in a tabular form under categories that represent the review’s objectives. This will include the theoretical frameworks/conceptual models, stakeholder involvement, tool content, intended use of the tool, validation and strengths and limitations of the tool.
A key strength of this review is using a scoping review methodology which is appropriate for the review question because it will provide a descriptive and broad overview on the development of QOL tools used in care homes. Potential limitations include limiting the searches to only studies published in English.
Usman, A., Lewis, S., Clarkson, P., & Gordon, A. Development and Validation of Quality of Life Measurement Tools Used in Older Peoples’ Care Homes: a scoping review protocol