Nicola Jane Rowbotham
A refresh of the top 10 research priorities in cystic fibrosis
Rowbotham, Nicola Jane; Smith, Sherie; Elliott, Zoe C.; Cupid, Belinda; Allen, Lorna J.; Cowan, Katherine; Allen, Lucy; Smyth, Alan Robert
Authors
SHERIE SMITH sherie.smith@nottingham.ac.uk
Cochrane Systematic Reviewer
Zoe C. Elliott
Belinda Cupid
Lorna J. Allen
Katherine Cowan
Lucy Allen
Alan Robert Smyth
Abstract
In 2018 we published the James Lind Alliance (JLA) top 10 priorities for clinical research in cystic fibrosis (CF), chosen jointly by the patient and clinical communities. These priorities have led to new research funding. To establish whether priorities have changed with novel modulator therapies, we undertook an online international update through a series of surveys and a workshop. Patients and clinicians (n=1417) chose the refreshed top 10 from 971 new research questions (suggested by patients and clinicians) and 15 questions from 2018. We are working with the international community to promote research based on these refreshed top 10 priorities.
Journal Article Type | Article |
---|---|
Acceptance Date | May 5, 2023 |
Online Publication Date | Jun 7, 2023 |
Publication Date | 2023-08 |
Deposit Date | Jun 9, 2023 |
Publicly Available Date | Jun 12, 2023 |
Journal | Thorax |
Print ISSN | 0040-6376 |
Electronic ISSN | 1468-3296 |
Publisher | BMJ |
Peer Reviewed | Peer Reviewed |
Volume | 78 |
Issue | 8 |
Pages | 840-843 |
DOI | https://doi.org/10.1136/thorax-2023-220100 |
Keywords | Pulmonary and Respiratory Medicine |
Public URL | https://nottingham-repository.worktribe.com/output/21646187 |
Publisher URL | https://thorax.bmj.com/content/early/2023/06/07/thorax-2023-220100 |
Files
Rowbotham Thorax 2023 JLA Refresh
(1.7 Mb)
PDF
Publisher Licence URL
https://creativecommons.org/licenses/by/4.0/
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