Outputs (10)

An International Validation of a Clinical Tool to Assess Carers’ Quality of Life in Huntington’s Disease (2019)
Journal Article

Family carers of individual’s living with Huntington’s Disease (HD) manage a distinct and unique series of difficulties arising from the complex nature of HD. This paper presents the validation of the definitive measure of quality of life for this gr... Read More about An International Validation of a Clinical Tool to Assess Carers’ Quality of Life in Huntington’s Disease.

Exploring the Reliability and Validity of the Huntington’s Disease Quality of Life Battery for Carers (HDQoL-C) within A Polish Population (2019)
Journal Article

Huntington’s disease (HD) is a rare genetic neurodegenerative disorder that causes motor disorders, neuropsychiatric symptoms and a progressing deterioration of cognitive functions. Complex issues resulting from the hereditary nature of HD, the compl... Read More about Exploring the Reliability and Validity of the Huntington’s Disease Quality of Life Battery for Carers (HDQoL-C) within A Polish Population.

Factor and reliability analysis of a brief scale to measure motivation to change lifestyle for dementia risk reduction in the UK: the MOCHAD-10 (2019)
Journal Article

Background: Modifying lifestyle risk factors for dementia is a public health priority. Motivation for change is integral to the modification of health risk behaviours. This study investigates the psychometric properties of the previously validated to... Read More about Factor and reliability analysis of a brief scale to measure motivation to change lifestyle for dementia risk reduction in the UK: the MOCHAD-10.

A Study Using Visual Art Methods to Explore the Perceptions and Barriers of Self-Management in Children and Adolescents with Lymphedema (2019)
Journal Article

Background: The aims of this study were to explore, using visual art methodology, how children and adolescents perceive their lymphedema and conceptualize the barriers and enablers in self-management and to explore the role of an educational camp in... Read More about A Study Using Visual Art Methods to Explore the Perceptions and Barriers of Self-Management in Children and Adolescents with Lymphedema.

Prevalence and risk factors for chronic oedema in U.K. community nursing services (2019)
Journal Article

© Christine J. Moffatt et al. 2019; Published by Mary Ann Liebert, Inc. 2019. Background and Study Design: Chronic edema (CO) is believed to be a major clinical problem within community nursing services in the United Kingdom. This study was undertake... Read More about Prevalence and risk factors for chronic oedema in U.K. community nursing services.

A Study to Explore the Professional Conceptualization and Challenges of Self-Management in Children and Adolescents with Lymphedema (2019)
Journal Article

Background: The aim of this study was to explore the professional experience of caring for children and adolescents with lymphedema and to explore the way in which they understand and implement self-management strategies and the influence of their ow... Read More about A Study to Explore the Professional Conceptualization and Challenges of Self-Management in Children and Adolescents with Lymphedema.

LIMPRINT: A Sociological Perspective on “Chronic Edema” (2019)
Journal Article

Background: Chronic edema is a condition that is biologically complex, distressing for patients and sociopolitically weak. Like many other complex and chronic conditions, it has a low status within health care. The result is that it has a low priorit... Read More about LIMPRINT: A Sociological Perspective on “Chronic Edema”.

A Study to Explore the Parental Impact and Challenges of Self-Management in Children and Adolescents Suffering with Lymphedema (2019)
Journal Article

Background: Limited research has shown the impact lymphedema has on children and families. The aim of this study was to explore the parental experience of caring for a child or adolescent with lymphedema and the daily challenges of self-management an... Read More about A Study to Explore the Parental Impact and Challenges of Self-Management in Children and Adolescents Suffering with Lymphedema.

Clinical and ethical challenges in undertaking LIMPRINT in vulnerable populations (2019)
Journal Article

Background and Study Objective: To estimate the prevalence of chronic edema (CO) and wounds within two vulnerable populations, a male high security prison in the East Midlands (United Kingdom) and residential and nursing homes in the United Kingdom a... Read More about Clinical and ethical challenges in undertaking LIMPRINT in vulnerable populations.

Staff perception of obstacles and facilitators when providing end of life care in critical care units of two teaching hospitals: A survey design (2019)
Journal Article

Objective: To determine perceptions of Jordanian critical care staff about obstacles and facilitators to end-of-life care. Research methodology: The ‘‘National Survey of Critical Care Nurses’ Perceptions of End-of-Life Care” wasadapted and distribut... Read More about Staff perception of obstacles and facilitators when providing end of life care in critical care units of two teaching hospitals: A survey design.