All Outputs (10)

REMOTE-ILD study: Description of the protocol for a multicentre, 12-month randomised controlled trial to assess the clinical and cost-effectiveness of remote monitoring of spirometry and pulse oximetry in patients with interstitial lung disease (2024)
Journal Article
Barth, S., Edwards, C., Borton, R., Beever, D., Adams, W., Jenkins, G., …Wickremasinghe, M. (2024). REMOTE-ILD study: Description of the protocol for a multicentre, 12-month randomised controlled trial to assess the clinical and cost-effectiveness of remote monitoring of spirometry and pulse oximetry in patients with interstitial lung disease. BMJ Open Respiratory Research, 11(1), Article e002067. https://doi.org/10.1136/bmjresp-2023-002067

Introduction Remote monitoring of home physiological measurements has been proposed as a solution to support patients with chronic diseases as well as facilitating virtual consultations and pandemic preparedness for the future. Daily home spirometry... Read More about REMOTE-ILD study: Description of the protocol for a multicentre, 12-month randomised controlled trial to assess the clinical and cost-effectiveness of remote monitoring of spirometry and pulse oximetry in patients with interstitial lung disease.

The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus (2022)
Journal Article
Williams, C., Barker, A. R., Denford, S., Van Beurden, S. B., Bianchim, M. S., Caterini, J. E., …Tomlinson, O. W. (2022). The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus. Chronic Respiratory Disease, 19, https://doi.org/10.1177/14799731221121670

Background The roles of physical activity (PA) and exercise within the management of cystic fibrosis (CF) are recognised by their inclusion in numerous standards of care and treatment guidelines. However, information is brief, and both PA and exerci... Read More about The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus.

Understanding the current nutritional management for people with amyotrophic lateral sclerosis - A mapping review (2022)
Journal Article
Essat, M., Coates, E., Clowes, M., Beever, D., Hackney, G., White, S., …McDermott, C. (2022). Understanding the current nutritional management for people with amyotrophic lateral sclerosis - A mapping review. Clinical Nutrition ESPEN, 49, 328-340. https://doi.org/10.1016/j.clnesp.2022.03.026

Background & aims Poor nutritional outcomes are observed in people with Amyotrophic Lateral Sclerosis (pwALS) including weight loss and poor dietary intake. Surveys of healthcare professionals have highlighted the lack of evidence and knowledge rega... Read More about Understanding the current nutritional management for people with amyotrophic lateral sclerosis - A mapping review.

Patient, carer and healthcare professional perspectives on increasing calorie intake in Amyotrophic Lateral Sclerosis (2021)
Journal Article
Coates, L., Zarotti, N., Williams, I., White, S., Halliday, V., Beever, D., …McDermott, C. (2023). Patient, carer and healthcare professional perspectives on increasing calorie intake in Amyotrophic Lateral Sclerosis. Chronic Illness, 19(2), 368-382. https://doi.org/10.1177/17423953211069090

Objectives Research suggests that higher Body Mass Index is associated with improved survival in people with Amyotrophic Lateral Sclerosis (pwALS). Yet, understanding of the barriers and enablers to increasing calorie intake is limited. This study s... Read More about Patient, carer and healthcare professional perspectives on increasing calorie intake in Amyotrophic Lateral Sclerosis.

CMS-55 Development of theOptiCALS nutritional supportintervention for people withamyotrophic lateral sclerosis (2021)
Journal Article
White, S., Baird, W., Beever, D., Brading, L., Coates, E., Hackney, G., …group, H. (2021). CMS-55 Development of theOptiCALS nutritional supportintervention for people withamyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 22(Issue sup2: Abstracts from the 32nd International Symposium on ALS/MND), 232. https://doi.org/10.1080/21678421.2021.1985802

CLT-38 Enabling effective public involvement: a case study ofinvolvement in the HighCALSresearch programme (2021)
Journal Article
Beever, D., Quinn, A., Baird, W., White, S., Brading, L., Hackney, G., …group, H. (2021). CLT-38 Enabling effective public involvement: a case study ofinvolvement in the HighCALSresearch programme. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 22(Issue sup2: Abstracts from the 32nd International Symposium on ALS/MND), 171. https://doi.org/10.1080/21678421.2021.1985796

Self-management intervention to reduce pulmonary exacerbations by supporting treatment adherence in adults with cystic fibrosis: a randomised controlled trial (2021)
Journal Article
Wildman, M. J., O’Cathain, A., Maguire, C., Arden, M. A., Hutchings, M., Bradley, J., …Beever, D. (2022). Self-management intervention to reduce pulmonary exacerbations by supporting treatment adherence in adults with cystic fibrosis: a randomised controlled trial. Thorax, 77(5), 461-469. https://doi.org/10.1136/thoraxjnl-2021-217594

Introduction Recurrent pulmonary exacerbations lead to progressive lung damage in cystic fibrosis (CF). Inhaled medications (mucoactive agents and antibiotics) help prevent exacerbations, but objectively measured adherence is low. We investigated whe... Read More about Self-management intervention to reduce pulmonary exacerbations by supporting treatment adherence in adults with cystic fibrosis: a randomised controlled trial.

An intervention to support adherence to inhaled medication in adults with cystic fibrosis: the ACtiF research programme including RCT (2021)
Journal Article
Wildman, M. J., O’Cathain, A., Hind, D., Maguire, C., Arden, M. A., Hutchings, M., …Sasso, A. (2021). An intervention to support adherence to inhaled medication in adults with cystic fibrosis: the ACtiF research programme including RCT. Programme Grants for Applied Research, 9(11), 1-146. https://doi.org/10.3310/pgfar09110

Background People with cystic fibrosis frequently have low levels of adherence to inhaled medications. Objectives The objectives were to develop and evaluate an intervention for adults with cystic fibrosis to improve adherence to their inhaled m... Read More about An intervention to support adherence to inhaled medication in adults with cystic fibrosis: the ACtiF research programme including RCT.

Interventions to promote oral nutritional behaviours in people living with neurodegenerative disorders of the motor system: A systematic review (2019)
Journal Article
Essat, M., Archer, R., Williams, I., Zarotti, N., Coates, E., Clowes, M., …McDermott, C. (2020). Interventions to promote oral nutritional behaviours in people living with neurodegenerative disorders of the motor system: A systematic review. Clinical Nutrition, 39(8), 2547-2556. https://doi.org/10.1016/j.clnu.2019.11.015

Background & aims Weight loss is common in people with neurodegenerative diseases of the motor system (NDMS), such as Parkinson's disease and Amyotrophic Lateral Sclerosis, and is associated with reduced quality of life, functional ability and survi... Read More about Interventions to promote oral nutritional behaviours in people living with neurodegenerative disorders of the motor system: A systematic review.

An evaluation of risk-based monitoring in pragmatic trials in UK Clinical Trials Units (2019)
Journal Article
Beever, D., & Swaby, L. (2019). An evaluation of risk-based monitoring in pragmatic trials in UK Clinical Trials Units. Trials, 20(1), Article 556. https://doi.org/10.1186/s13063-019-3619-6

Background Good Clinical Practice guidelines issued in 2016 encourage risk-based approaches to monitoring clinical trials. This study compared current risk assessment and monitoring approaches in UK Clinical Trials Units (CTUs) with the published gu... Read More about An evaluation of risk-based monitoring in pragmatic trials in UK Clinical Trials Units.