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All Outputs (3)

Outcomes and endpoints reported in studies of pulmonary exacerbations in people with cystic fibrosis: A systematic review (2020)
Journal Article

Background: There is no consensus about which outcomes should be evaluated in studies of pulmonary exacerbations in people with cystic fibrosis (CF). Outcomes used for evaluation should be meaningful; that is, they should capture how people feel, fun... Read More about Outcomes and endpoints reported in studies of pulmonary exacerbations in people with cystic fibrosis: A systematic review.

How can we relieve gastrointestinal symptoms in people with cystic fibrosis? An international qualitative survey (2020)
Journal Article

Introduction Relieving gastrointestinal (GI) symptoms was identified as a ‘top ten’ priority by our James Lind Alliance Priority Setting Partnership in cystic fibrosis (CF). We conducted an online survey to find out more about the effect of GI sympto... Read More about How can we relieve gastrointestinal symptoms in people with cystic fibrosis? An international qualitative survey.

What effective ways of motivation, support and technologies help people with cystic fibrosis improve and sustain adherence to treatment? (2020)
Journal Article

Introduction: “What effective ways of motivation, support and technologies help people with cystic fibrosis improve and sustain adherence to treatment?” was identified as one of the James Lind Alliance Priority Setting Partnership’s top 10 research q... Read More about What effective ways of motivation, support and technologies help people with cystic fibrosis improve and sustain adherence to treatment?.