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All Outputs (6)

Patterns of engagement with inflammatory bowel disease online support groups: comparing posters and lurkers (2015)
Journal Article

Little is known about the varying patterns of member engagement within inflammatory bowel disease online support groups. The aim of the study was, therefore, to compare posters and lurkers (i.e., those who read messages but choose not to post) in ter... Read More about Patterns of engagement with inflammatory bowel disease online support groups: comparing posters and lurkers.

Exploring patients' engagement with web-based peer support for Inflammatory Bowel Disease: forums or Facebook? (2015)
Journal Article

Whilst the popularity of health-related peer-to-peer web-based support shows no sign of diminishing, comparatively little is known about the factors associated with engagement in alternative web-based types of support (e.g. chat rooms, discussion for... Read More about Exploring patients' engagement with web-based peer support for Inflammatory Bowel Disease: forums or Facebook?.

Online social support for Complex Regional Pain Syndrome: a content analysis of support exchanges within a newly launched discussion forum (2015)
Journal Article

Complex Regional Pain Syndrome is a debilitating illness characterised by unexplained pain that is disproportionate to any initiating event. Individuals living with CRPS can become socially isolated, and online support communities may provide them wi... Read More about Online social support for Complex Regional Pain Syndrome: a content analysis of support exchanges within a newly launched discussion forum.

Co-creation of information leaflets to meet the support needs of people living with Complex Regional Pain Syndrome (CRPS) through innovative use of wiki technology (2015)
Journal Article

Objective: People living with Complex Regional Pain Syndrome (CRPS) experience frustration with the lack of knowledge and understanding of CRPS as a pain condition. We report on our attempt to address this issue. Method: People living with CRPS t... Read More about Co-creation of information leaflets to meet the support needs of people living with Complex Regional Pain Syndrome (CRPS) through innovative use of wiki technology.