All Outputs (7)

Communication strategies and persuasion as core components of shared decision-making for children with life-limiting conditions: A multiple case study (2021)
Journal Article

Background Families and professionals caring for children with life-limiting conditions face difficult healthcare decisions. Shared decision-making is promoted in many countries, however little is known about factors influencing these processes.... Read More about Communication strategies and persuasion as core components of shared decision-making for children with life-limiting conditions: A multiple case study.

Managing medicines at the end of life: a position paper for health policy and practice (2021)
Journal Article

Purpose The impact of population aging is significant, multifaceted and characterised by frailty and multi-morbidity. The COVID-19 pandemic has accelerated care pathways and policies promoting self-management and home-based care. One under-researched... Read More about Managing medicines at the end of life: a position paper for health policy and practice.

Managing medicines at the end of life: a position paper for health policy and practice (2021)
Journal Article

Purpose: The impact of population ageing is significant, multifaceted and characterised by frailty and multi-morbidity. The COVID-19 pandemic has accelerated care pathways and policies promoting self-management and home-based care. One under-research... Read More about Managing medicines at the end of life: a position paper for health policy and practice.

Family and health-care professionals managing medicines for patients with serious and terminal illness at home: a qualitative study (2021)
Journal Article

Background More effective ways of managing symptoms of chronic and terminal illness enable patients to be cared for, and to die, at home. This requires patients and family caregivers to manage complex medicines regimens, including powerful painkille... Read More about Family and health-care professionals managing medicines for patients with serious and terminal illness at home: a qualitative study.

The Influence of Curator Goals on Collections of Lived Experience Narratives: A Qualitative Study (2021)
Journal Article

Objective: The aim of this study was to investigate how curator goals influence the design of curation processes for collections of mental health lived experience narratives. The objectives were (1) to characterize the goals of a range of curators of... Read More about The Influence of Curator Goals on Collections of Lived Experience Narratives: A Qualitative Study.

Recorded Mental Health Recovery Narratives as a Resource for People Affected by Mental Health Problems: Development of the Narrative Experiences Online (NEON) Intervention (2021)
Journal Article

Background: Social media platforms have enabled the sharing of digital narratives about health concerns on a substantial scale. Some health interventions have integrated digital health narratives, for example to give voice to under-represented popu... Read More about Recorded Mental Health Recovery Narratives as a Resource for People Affected by Mental Health Problems: Development of the Narrative Experiences Online (NEON) Intervention.

Institutional injustice: Implications for system transformation emerging from the mental health recovery narratives of people experiencing marginalisation (2021)
Journal Article

Background: Institutional injustice refers to structures that create disparities in resources, opportunities and representation. Marginalised people experience institutional injustice, inequalities and discrimination through intersecting personal c... Read More about Institutional injustice: Implications for system transformation emerging from the mental health recovery narratives of people experiencing marginalisation.