All Outputs (4)

The use of an online support group for neuromuscular disorders: a thematic analysis of message postings (2017)
Journal Article

Purpose: People affected by neuromuscular disorders can experience adverse psychosocial consequences and difficulties accessing information and support. Online support groups provide new opportunities for peer support. The aim of this study was to un... Read More about The use of an online support group for neuromuscular disorders: a thematic analysis of message postings.

Caregiving in multiple sclerosis and quality of life: a meta-synthesis of qualitative research (2016)
Journal Article

Objective: The lack of adequate conceptualisation and operationalisation of quality of life (QoL) limits the ability to have a consistent body of evidence to improve QoL research and practice in informal caregiving for people with multiple sclerosis... Read More about Caregiving in multiple sclerosis and quality of life: a meta-synthesis of qualitative research.

The impact of amelogenesis imperfecta and support needs of adolescents with AI and their parents: an exploratory study (2014)
Journal Article

BACKGROUND: Amelogenesis imperfecta (AI) is a rare inherited dental defect where enamel does not form properly on the teeth. Research has shown that adolescents with AI may experience adverse psychosocial effects; however the impact on parents has n... Read More about The impact of amelogenesis imperfecta and support needs of adolescents with AI and their parents: an exploratory study.

A psychometric comparison of two carer quality of life questionnaires in Huntington's disease: implications for neurodegenerative disorders - a response to: Hagell and Smith (2013) Journal of Huntington’s Disease 2(3) 315-322 (2013)
Journal Article