All Outputs (12)

Indigenous or biomedical ethics, or both? A consideration from health-related ethnographic research conducted in a rural setting (2023)
Journal Article

Generally, conventional biomedically rooted ethical guidelines developed in Western countries for ethnographic research in non-Western countries are often impractical and raise contention. Ethical approval from research ethics committees (RECs) is a... Read More about Indigenous or biomedical ethics, or both? A consideration from health-related ethnographic research conducted in a rural setting.

Self-management interventions for children and young people with sickle cell disease: A systematic review (2023)
Journal Article

AbstractBackgroundIncreasing numbers of interventions are being developed to support self‐management for children and young people (CYP) with sickle cell disease (SCD), but no systematic review has systematically synthesized this evidence regarding t... Read More about Self-management interventions for children and young people with sickle cell disease: A systematic review.

Research knowledge transfer to improve the care and support of adolescents with sickle cell disease in Ghana (2022)
Journal Article

Introduction: Effective transfer of research findings to key knowledge users, particularly in low- and middle-income countries, is not always achieved, despite being a shared priority among researchers, funders, healthcare and community stakeholders... Read More about Research knowledge transfer to improve the care and support of adolescents with sickle cell disease in Ghana.

The practice of pilot/feasibility studies in informing the conduct of HIV related clinical trials in sub-Saharan Africa: A scoping review (2022)
Journal Article

Introduction: Pilot/feasibility studies represent a fundamental phase of the research process and play a vital role in the preliminary planning of a full size HIV clinical trial. Published HIV clinical trial protocols were reviewed to establish the e... Read More about The practice of pilot/feasibility studies in informing the conduct of HIV related clinical trials in sub-Saharan Africa: A scoping review.

Biographical accounts of the impact of fatigue in young people with sickle cell disease (2022)
Journal Article

Children and young people (CYP) with sickle cell disease (SCD) are a 'missing voice' in the debate on biography and sociology of chronic illness, meaning we know little about the social consequences of the illness for CYP. This paper examines the mea... Read More about Biographical accounts of the impact of fatigue in young people with sickle cell disease.

How a child's gender mediates maternal care and expectations in the fatigue experiences of adolescents with sickle cell disease (2022)
Journal Article

Despite the chronicity and biopsychosocial significance of fatigue in sickle cell disease (SCD), it is rarely prioritized in understanding illness experiences and the social consequences of SCD for children, young people and their families. This stud... Read More about How a child's gender mediates maternal care and expectations in the fatigue experiences of adolescents with sickle cell disease.

Characterising the outcomes, impacts and implementation challenges of advanced clinical practice roles in the UK: A scoping review (2021)
Journal Article

Objectives In response to demographic and health system pressures, the development of non-medical advanced clinical practice (ACP) roles is a key component of National Health Service workforce transformation policy in the UK. This review was undertak... Read More about Characterising the outcomes, impacts and implementation challenges of advanced clinical practice roles in the UK: A scoping review.

Characterising the evidence base for advanced clinical practice in the UK: A scoping review protocol (2020)
Journal Article

© Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. Introduction A global health workforce crisis, coupled with ageing populations, wars and the rise of non-com... Read More about Characterising the evidence base for advanced clinical practice in the UK: A scoping review protocol.

“Body as a Machine”: How Adolescents With Sickle Cell Disease Construct Their Fatigue Experiences (2020)
Journal Article

Research exploring illness experiences of young people with sickle cell disease (SCD) has, to date, ignored fatigue, despite the distinctive anemic nature of SCD. To examine adolescents with SCD fatigue experiences, we conducted narrative and picture... Read More about “Body as a Machine”: How Adolescents With Sickle Cell Disease Construct Their Fatigue Experiences.

The Opportunities and Challenges of Using Photo-Elicitation in Child-Centered Constructivist Grounded Theory Research (2019)
Journal Article

In the last three decades, there has been a growing interest in listening to children’s voices in child health research. Ensuring an appropriate level of dialogical engagement with children calls for participatory methods. Auto-driven photo-elicitati... Read More about The Opportunities and Challenges of Using Photo-Elicitation in Child-Centered Constructivist Grounded Theory Research.

Reducing repeat paediatric emergency department attendance for non-urgent care: a systematic review of the effectiveness of interventions (2019)
Journal Article

Objective Non-urgent paediatric ED (PED) visits appear to contribute a large portion to the growing use of EDs globally. Several interventions have tried to curb repeated non-urgent attendances, but no systematic review of their effectiveness exists.... Read More about Reducing repeat paediatric emergency department attendance for non-urgent care: a systematic review of the effectiveness of interventions.

Adolescents’ experiences of living with sickle cell disease: An integrative narrative review of the literature (2017)
Journal Article

Background Sickle Cell Disease is the commonest monogenic haemoglobinopathy worldwide. Living with a long-term condition such as sickle cell disease during adolescence constitutes a significant challenge for the key stakeholders due to the combined... Read More about Adolescents’ experiences of living with sickle cell disease: An integrative narrative review of the literature.