How a child's gender mediates maternal care and expectations in the fatigue experiences of adolescents with sickle cell disease

Poku, Brenda Agyeiwaa; Pilnick, Alison; Kirk, Susan

doi:10.1080/13229400.2022.2060851

All Outputs (4)

Research knowledge transfer to improve the care and support of adolescents with sickle cell disease in Ghana (2022)
Journal Article

Introduction: Effective transfer of research findings to key knowledge users, particularly in low- and middle-income countries, is not always achieved, despite being a shared priority among researchers, funders, healthcare and community stakeholders... Read More about Research knowledge transfer to improve the care and support of adolescents with sickle cell disease in Ghana.

The practice of pilot/feasibility studies in informing the conduct of HIV related clinical trials in sub-Saharan Africa: A scoping review (2022)
Journal Article

Introduction: Pilot/feasibility studies represent a fundamental phase of the research process and play a vital role in the preliminary planning of a full size HIV clinical trial. Published HIV clinical trial protocols were reviewed to establish the e... Read More about The practice of pilot/feasibility studies in informing the conduct of HIV related clinical trials in sub-Saharan Africa: A scoping review.

Biographical accounts of the impact of fatigue in young people with sickle cell disease (2022)
Journal Article

Children and young people (CYP) with sickle cell disease (SCD) are a 'missing voice' in the debate on biography and sociology of chronic illness, meaning we know little about the social consequences of the illness for CYP. This paper examines the mea... Read More about Biographical accounts of the impact of fatigue in young people with sickle cell disease.

How a child's gender mediates maternal care and expectations in the fatigue experiences of adolescents with sickle cell disease (2022)
Journal Article

Despite the chronicity and biopsychosocial significance of fatigue in sickle cell disease (SCD), it is rarely prioritized in understanding illness experiences and the social consequences of SCD for children, young people and their families. This stud... Read More about How a child's gender mediates maternal care and expectations in the fatigue experiences of adolescents with sickle cell disease.