An analysis of the research team-service user relationship from the service user perspective: a consideration of ‘The three Rs’ (roles, relations, and responsibilities) for healthcare research organisations

Jordan, Melanie; Rowley, Emma; Morriss, Richard K.; Manning, Nick

Abstract

Background

This article debates interview data from service users who engaged with the work of a Collaboration for Leadership in Applied Health Research and Care (CLAHRC). The evidence base, to date, concerning the nature of CLAHRC work at the frontline (i.e. What is it actually like to do CLAHRC work?) is meagre; thus, this article represents an original contribution to that literature. Further, this article analyses service users' participation in research – as members of the research team – and so contributes to the body of developing literature regarding involvement too.

Objective

This article explores the nature of the Research Team–Service User relationship, plus associated roles, relations and responsibilities of collaborative health research.

Design

Qualitative social science research was undertaken in a health-care research organization utilizing interview method and a medical sociology and organizational sociology theoretical framework for analysis. Data utilized originate from a larger evaluation study that focuses on the CLAHRC as an iterative organization and explores members' experiences.

Results

There can be a disparity between initial expectations and actual experiences of involvement for service users. Therefore, as structured via ‘The Three Rs’ (Roles, Relations and Responsibilities), aspects of the relationship are evaluated (e.g. motivation, altruism, satisfaction, transparency, scope, feedback, communication, time).

Regarding the inclusion of service users in health research teams, a careful consideration of ‘The Three Rs’ is required to ensure expectations match experiences.

Citation

Jordan, M., Rowley, E., Morriss, R. K., & Manning, N. (2015). An analysis of the research team-service user relationship from the service user perspective: a consideration of ‘The three Rs’ (roles, relations, and responsibilities) for healthcare research organisations. Health Expectations, 18(6), https://doi.org/10.1111/hex.12243

• Journal Article Type: Article
• Acceptance Date: Jun 30, 2014
• Online Publication Date: Jul 25, 2014
• Publication Date: Dec 1, 2015
• Deposit Date: Feb 16, 2016
• Publicly Available Date: Feb 16, 2016
• Journal: Health Expectations
• Print ISSN: 1369-6513
• Electronic ISSN: 1369-7625
• Publisher: Wiley
• Peer Reviewed: Peer Reviewed
• Volume: 18
• Issue: 6
• DOI: https://doi.org/10.1111/hex.12243
• Keywords: Collaborative research , Team involvement expectations, Organizational learning, Roles and responsibilities; Service user, Team experiences
• Public URL: https://nottingham-repository.worktribe.com/output/980970
• Publisher URL: http://onlinelibrary.wiley.com/doi/10.1111/hex.12243/abstract
• Contract Date: Feb 16, 2016