Developing involvement during a programme of recovery research

Slade, Mike; Trivedi, Premila; Chandler, Ruth; Leamy, Mary

Abstract

Purpose

To consider the process of working with a Lived Experience Advisory Group (LEAP) and its outcomes in REFOCUS, a large 5 year programme of recovery research.

Design

Narrative reflections on the experience of working with LEAP were collected from five members and the Chair of LEAP, two REFOCUS researchers and the Principal Investigator (PI). These were synthesised to show both the process and outcomes of LEAP involvement in REFOCUS, and how involvement evolved organically over time.

Findings

Individual reflective accounts showed how working with LEAP impacted (to a greater or lesser extent) on each individual involved in the process, providing new insights and influencing, to varying degrees, the way in which they then worked with LEAP. Synthesis of the reflections showed how these changes impacted organically on LEAP's process of involvement, with a shift in LEAP's role from being purely consultative/advisory towards one which was much more about co-production, with LEAP proactively contributing to some aspects of Refocus in the later stages of the study.

Practical implications

We stress the importance of considering process as well as outcomes in Patient and Public Involvement (PPI), and make practical recommendations for improving both in future programmes of research.

Originality/value

This is the first empirical evaluation of user and carer involvement and its development during a large recovery research programme.

Citation

Slade, M., Trivedi, P., Chandler, R., & Leamy, M. (2016). Developing involvement during a programme of recovery research. Journal of Mental Health Training, Education and Practice, 11(4), 244-255. https://doi.org/10.1108/jmhtep-01-2016-0006

• Journal Article Type: Article
• Acceptance Date: Apr 20, 2016
• Online Publication Date: Sep 12, 2016
• Publication Date: Sep 12, 2016
• Deposit Date: Aug 8, 2016
• Publicly Available Date: Sep 12, 2016
• Journal: Journal of Mental Health Training, Education and Practice
• Print ISSN: 1755-6228
• Electronic ISSN: 2042-8707
• Publisher: Emerald
• Peer Reviewed: Peer Reviewed
• Volume: 11
• Issue: 4
• Pages: 244-255
• DOI: https://doi.org/10.1108/jmhtep-01-2016-0006
• Keywords: patient and public involvement, research programme, recovery, lived experience advisory panel, process of involvement
• Public URL: https://nottingham-repository.worktribe.com/output/980342
• Publisher URL: http://www.emeraldinsight.com/doi/abs/10.1108/JMHTEP-01-2016-0006
• Contract Date: Aug 8, 2016