Power up: patient and public involvement in developing a shared decision-making app for mental health

Edridge, Chloe; Edbrooke-Childs, Julian; Martin, Kate; Delane, Louise; Averill, Phoebe; Feltham, Amy; Rees, Jessica; Jeremy, Grace; Chapman, Louise; Craven, Michael P.; Wolpert, Miranda

Abstract

Background: The importance of patient and public involvement (PPI) in designing interventions to support young people’s mental health is becoming a central tenet of the research process. Existing research has indicated that co-design with service users may help to engender multiple improvements in research projects, from design through to applications of study findings.
Aims: The aim of this study is to examine our experience of making the involvement of young people an ongoing part of the research process. We report on PPI in relation to a feasibility trial of the development of an app called Power Up, which is designed to support shared decision-making in mental health.
Method: Young people, carers, and clinicians were involved in each aspect of the project from governance, needs and environment analysis, to development and revisions of the Power Up smartphone app intended for use within child and adolescent mental health services. Involvement was achieved through ongoing contributions to steering groups, co-design workshops, and interviews. The project model was approached as a cyclical multidirectional process of ideas, PPI input, reflection, and alterations.
Conclusion: PPI was embedded into the project model from the outset, to be iterative and cyclical informing the development and direction of the digital tool at each stage. Involving service users resulted in the identification and implementation of multiple changes to the app, both conceptual and tangible. Several challenges associated with PPI were also encountered, warranting future research and discussion.

Citation

Edridge, C., Edbrooke-Childs, J., Martin, K., Delane, L., Averill, P., Feltham, A., Rees, J., Jeremy, G., Chapman, L., Craven, M. P., & Wolpert, M. (2018). Power up: patient and public involvement in developing a shared decision-making app for mental health. The Journal of Health Design, 3(1), 63-74. https://doi.org/10.21853/JHD.2018.40

• Journal Article Type: Article
• Acceptance Date: Mar 12, 2018
• Online Publication Date: Mar 22, 2018
• Publication Date: Mar 22, 2018
• Deposit Date: Mar 28, 2018
• Publicly Available Date: Mar 28, 2018
• Journal: Journal of Health Design
• Electronic ISSN: 2206-785X
• Peer Reviewed: Peer Reviewed
• Volume: 3
• Issue: 1
• Pages: 63-74
• DOI: https://doi.org/10.21853/JHD.2018.40
• Keywords: PPI; app; MHealth, shared decision-making; co-design
• Public URL: https://nottingham-repository.worktribe.com/output/921029
• Publisher URL: https://doi.org/10.21853/JHD.2018.40
• Contract Date: Mar 28, 2018