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Exploring self-tracking practices for those with lived experience of bipolar disorder: Learning from combined principles of Patient and Public Involvement and HCI

Majid, Shazmin; Morriss, Richard; Figueredo, Grazziela; Reeves, Stuart

Exploring self-tracking practices for those with lived experience of bipolar disorder: Learning from combined principles of Patient and Public Involvement and HCI Thumbnail


Authors

Shazmin Majid

RICHARD MORRISS richard.morriss@nottingham.ac.uk
Professor of Psychiatry and Community Mental Health

Grazziela Figueredo



Abstract

Bipolar Disorder (BD) is a complex, cyclical and chronic mental illness where self-tracking is central to self-management. Mobile technology is often leveraged to support this. Limited research has investigated the everyday practices of self-tracking for BD, and it is unclear how the normative ontology that is seen in existing self-tracking technology discourses (e.g. the Quantified Self movement) is applicable to the domain of mental health. Combining principles of Patient and Public Involvement (PPI) - a staple research design principle in mental healthcare - with design and HCI-oriented research approaches, we conducted interviews and workshops with people with lived experience of BD to explore reasons and methods for self-tracking, and challenges and opportunities for technology. Our results describe recommendations for the design of self-tracking mental health technology. We also reflect upon the complex role of researchers working at the intersection of emerging mental health technologies, the principles of PPI, and HCI research.

Citation

Majid, S., Morriss, R., Figueredo, G., & Reeves, S. (2022). Exploring self-tracking practices for those with lived experience of bipolar disorder: Learning from combined principles of Patient and Public Involvement and HCI. In DIS '22: Designing Interactive Systems Conference (1907-1920). https://doi.org/10.1145/3532106.3533531

Presentation Conference Type Edited Proceedings
Conference Name DIS 2022 - Proceedings of the 2022 ACM Designing Interactive Systems Conference: Digital Wellbeing
Start Date Jun 13, 2022
End Date Jun 17, 2022
Acceptance Date Jun 1, 2022
Online Publication Date Jun 13, 2022
Publication Date Jun 13, 2022
Deposit Date Jun 22, 2022
Publicly Available Date Jul 6, 2022
Publisher Association for Computing Machinery (ACM)
Pages 1907-1920
Book Title DIS '22: Designing Interactive Systems Conference
ISBN 9781450393584
DOI https://doi.org/10.1145/3532106.3533531
Public URL https://nottingham-repository.worktribe.com/output/8632743
Publisher URL https://dl.acm.org/doi/10.1145/3532106.3533531

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