Exploring self-tracking practices for those with lived experience of bipolar disorder: Learning from combined principles of Patient and Public Involvement and HCI

Majid, Shazmin; Morriss, Richard; Figueredo, Grazziela; Reeves, Stuart

Abstract

Bipolar Disorder (BD) is a complex, cyclical and chronic mental illness where self-tracking is central to self-management. Mobile technology is often leveraged to support this. Limited research has investigated the everyday practices of self-tracking for BD, and it is unclear how the normative ontology that is seen in existing self-tracking technology discourses (e.g. the Quantified Self movement) is applicable to the domain of mental health. Combining principles of Patient and Public Involvement (PPI) - a staple research design principle in mental healthcare - with design and HCI-oriented research approaches, we conducted interviews and workshops with people with lived experience of BD to explore reasons and methods for self-tracking, and challenges and opportunities for technology. Our results describe recommendations for the design of self-tracking mental health technology. We also reflect upon the complex role of researchers working at the intersection of emerging mental health technologies, the principles of PPI, and HCI research.

Citation

Majid, S., Morriss, R., Figueredo, G., & Reeves, S. (2022). Exploring self-tracking practices for those with lived experience of bipolar disorder: Learning from combined principles of Patient and Public Involvement and HCI. In DIS '22: Designing Interactive Systems Conference (1907-1920). https://doi.org/10.1145/3532106.3533531

• Conference Name: DIS 2022 - Proceedings of the 2022 ACM Designing Interactive Systems Conference: Digital Wellbeing
• Conference Location: Virtual Event, Australia
• Start Date: Jun 13, 2022
• End Date: Jun 17, 2022
• Acceptance Date: Jun 1, 2022
• Online Publication Date: Jun 13, 2022
• Publication Date: Jun 13, 2022
• Deposit Date: Jun 22, 2022
• Publicly Available Date: Jul 6, 2022
• Publisher: ACM
• Pages: 1907-1920
• Book Title: DIS '22: Designing Interactive Systems Conference
• ISBN: 9781450393584
• DOI: https://doi.org/10.1145/3532106.3533531
• Public URL: https://nottingham-repository.worktribe.com/output/8632743
• Publisher URL: https://dl.acm.org/doi/10.1145/3532106.3533531