Nicola J. Rowbotham email@example.com
The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and health care providers
Rowbotham, Nicola J.; Smith, Sherie; Leighton, Paul; Rayner, Oliver C.; Gathercole, K.; Elliott, Z.C.; Nash, Edward F.; Daniels, T.; Duff, A.J.A.; Collins, S.; Chandran, S.; Peaple, U.; Hurley, M.N.; Brownlee, K.; Smyth, Alan R.
SHERIE SMITH firstname.lastname@example.org
Cochrane Systematic Reviewer
PAUL LEIGHTON PAUL.LEIGHTON@NOTTINGHAM.AC.UK
Associate Professor of Applied Health Services Research
Oliver C. Rayner
Edward F. Nash
ALAN SMYTH email@example.com
Professor of Child Health
There remain many treatment uncertainties in cystic fibrosis (CF). With limited resources, research should focus on questions which are most important to the CF community. We conducted a James Lind Alliance Priority Setting Partnership in CF. Research questions were elicited and then prioritised in successive surveys. A workshop agreed the final Top 10. Online methods avoided cross infection and widened participation. The elicitation survey had 482 respondents (1080 questions) and prioritisation survey 677 respondents. Participants were drawn equally from the patient and clinical communities globally. We have achieved a consensus on ten research priorities which will be attractive to funders.
Rowbotham, N. J., Smith, S., Leighton, P., Rayner, O. C., Gathercole, K., Elliott, Z., …Smyth, A. R. (2018). The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and health care providers. Thorax, 73(4), 388-390. https://doi.org/10.1136/thoraxjnl-2017-210473
|Journal Article Type||Article|
|Acceptance Date||Jan 19, 2017|
|Online Publication Date||Aug 4, 2017|
|Publication Date||Apr 30, 2018|
|Deposit Date||Jun 26, 2017|
|Publisher||BMJ Publishing Group|
|Peer Reviewed||Peer Reviewed|
|Keywords||Cystic fibrosis, Patient engagement, Research priorities|
|Copyright Statement||Copyright information regarding this work can be found at the following address: http://eprints.nottingham.ac.uk/end_user_agreement.pdf|
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