Exploring the challenges of accessing medication for patients with cystic fibrosis

Herbert, Sophie; Rowbotham, Nicola; Smith, Sherie; Wilson, Patrick; Elliott, Zoe; Leighton, Paul; Duff, Alistair; Smyth, Alan Robert

Abstract

Reducing treatment burden in cystic fibrosis (CF) is the top research priority for patients and clinicians. Difficulty accessing medication is one aspect of treatment burden. We investigated this with an online survey available globally for patients with CF and healthcare professionals. Almost three quarters of patients with CF in our survey report difficulty getting repeat prescriptions on time, and most community pharmacists experience interrupted supplies of CF-specific medications. These barriers affect emotional and physical health of people with CF. Two-thirds of people with CF would like to get all their CF medication from one place, their CF centre.

Citation

Herbert, S., Rowbotham, N., Smith, S., Wilson, P., Elliott, Z., Leighton, P., …Smyth, A. R. (2022). Exploring the challenges of accessing medication for patients with cystic fibrosis. Thorax, 77(3), 295-297. https://doi.org/10.1136/thoraxjnl-2021-217140

• Journal Article Type: Article
• Acceptance Date: Aug 13, 2021
• Online Publication Date: Sep 23, 2021
• Publication Date: Mar 1, 2022
• Deposit Date: Sep 15, 2021
• Publicly Available Date: Sep 23, 2021
• Journal: Thorax
• Print ISSN: 0040-6376
• Electronic ISSN: 1468-3296
• Publisher: BMJ
• Peer Reviewed: Peer Reviewed
• Volume: 77
• Issue: 3
• Pages: 295-297
• DOI: https://doi.org/10.1136/thoraxjnl-2021-217140
• Keywords: Pulmonary and Respiratory Medicine
• Public URL: https://nottingham-repository.worktribe.com/output/6241156
• Publisher URL: https://thorax.bmj.com/content/early/2021/09/23/thoraxjnl-2021-217140