Developing a Fatigue Programme: Protocol for the Nottingham Fatigue After Stroke (NotFAST2)

Drummond, Avril; Ablewhite, Joanne; Condon, Laura; das Nair, Roshan; Jones, Amanda; Jones, Fiona; Sprigg, Nikola; Thomas, Shirley

Abstract

Introduction

Post-stroke fatigue is common and is one of the most distressing symptoms after stroke. It has a negative impact on physical, social and psychological functioning; it is also associated with poor outcomes and increased mortality. The effective management of post-stroke fatigue is therefore regarded as a clinical priority.

Method

This study will use a mixed-methods design with three overlapping phases. Phase 1 will be a survey of existing fatigue management within the United Kingdom. In phase 2, interviews and focus groups will be conducted with stroke survivors with fatigue, carers and clinicians to determine strategies used to manage fatigue successfully. In phase 3, data from phases 1 and 2 will contribute to the co-design of a fatigue management programme with the NotFAST2 study Patient and Public Involvement group. This will be further refined through subsequent focus groups, which will include those with fatigue associated with other health conditions.

Results

Survey data will be analysed using descriptive statistics. Interview and focus group data will be analysed using a framework approach.

Conclusion

Post-stroke fatigue requires a comprehensive management programme necessitating input from key stakeholders. A post-stroke fatigue programme will be developed which will be tested in a future randomised controlled trial.

Citation

Drummond, A., Ablewhite, J., Condon, L., das Nair, R., Jones, A., Jones, F., …Thomas, S. (2020). Developing a Fatigue Programme: Protocol for the Nottingham Fatigue After Stroke (NotFAST2). British Journal of Occupational Therapy, 83(11), 674-679. https://doi.org/10.1177/0308022620944797

• Journal Article Type: Article
• Acceptance Date: Jul 1, 2020
• Online Publication Date: Aug 20, 2020
• Publication Date: 2020-11
• Deposit Date: Jul 7, 2020
• Publicly Available Date: Aug 20, 2020
• Journal: British Journal of Occupational Therapy
• Print ISSN: 0308-0226
• Publisher: SAGE Publications
• Peer Reviewed: Peer Reviewed
• Volume: 83
• Issue: 11
• Pages: 674-679
• DOI: https://doi.org/10.1177/0308022620944797
• Public URL: https://nottingham-repository.worktribe.com/output/4755409
• Publisher URL: https://journals.sagepub.com/doi/abs/10.1177/0308022620944797