Conceptualizing Dementia Crisis and Preferences for Resolution: A Public Perspective

Yates, Jen; Stanyon, Miriam; Redley, Marcus; Coleston-Shields, Donna Maria

Abstract

Background: Crisis intervention services for people with dementia in the UK are poorly defined with no standardised model of working. This may be due to the lack of a clear conceptualisation of dementia crisis, resulting in variation in national service delivery.
Methods: This study employed a novel public engagement questionnaire data collection technique with 57 participants to gain an updated perspective on the concept of health-related crisis from the point of view of the public.
Results: Analysis revealed crisis as a transformational moment that may arrive unexpectedly, but could also be the culmination of a sequence of events. Crisis resolution requires external and expert help, and associated feelings of panic and despair can engender the task of resolution by oneself insurmountable.
Conclusions: Participants had clear expectations of crisis intervention services, with initial practical and emotional support to reduce risks, and a person-centred approach with family involvement.

Citation

Yates, J., Stanyon, M., Redley, M., & Coleston-Shields, D. M. (2020). Conceptualizing Dementia Crisis and Preferences for Resolution: A Public Perspective. Journal of Primary Care and Community Health, 11, https://doi.org/10.1177/2150132720925946

• Journal Article Type: Article
• Acceptance Date: Apr 17, 2020
• Online Publication Date: May 26, 2020
• Publication Date: May 26, 2020
• Deposit Date: Apr 23, 2020
• Publicly Available Date: May 26, 2020
• Journal: Journal of Primary Care & Community Health
• Print ISSN: 2150-1319
• Electronic ISSN: 2150-1327
• Publisher: SAGE Publications
• Peer Reviewed: Peer Reviewed
• Volume: 11
• DOI: https://doi.org/10.1177/2150132720925946
• Keywords: Public Health, Environmental and Occupational Health; Community and Home Care
• Public URL: https://nottingham-repository.worktribe.com/output/4325921
• Publisher URL: https://journals.sagepub.com/doi/10.1177/2150132720925946
• Additional Information: Running head: Public perceptions of dementia crisis