Outputs (5)

Informal carers’ experiences of caring for someone with Multiple Sclerosis: A photovoice investigation (2020)
Journal Article

Objectives: This study explores the lived experiences of carers of people with Multiple Sclerosis (MS), specifically in relation to their quality of life (QoL), through the use of images and narratives, with the aim of gaining a nuanced insight into... Read More about Informal carers’ experiences of caring for someone with Multiple Sclerosis: A photovoice investigation.

Caregiving in multiple sclerosis and quality of life: a meta-synthesis of qualitative research (2016)
Journal Article

Objective: The lack of adequate conceptualisation and operationalisation of quality of life (QoL) limits the ability to have a consistent body of evidence to improve QoL research and practice in informal caregiving for people with multiple sclerosis... Read More about Caregiving in multiple sclerosis and quality of life: a meta-synthesis of qualitative research.

A Multiple Timepoint Pre-post Evaluation of a ‘Sexual Respect’ DVD to Improve Competence in Discussing Sex with Patients with Disability (2014)
Journal Article

Sexual problems are common after chronic illnesses and disability, yet research indicates that this is a neglected area in healthcare services. Evaluation studies provide evidence of the effectiveness of education in enhancing professionals’ knowledg... Read More about A Multiple Timepoint Pre-post Evaluation of a ‘Sexual Respect’ DVD to Improve Competence in Discussing Sex with Patients with Disability.

A psychometric comparison of two carer quality of life questionnaires in Huntington's disease: implications for neurodegenerative disorders - a response to: Hagell and Smith (2013) Journal of Huntington’s Disease 2(3) 315-322 (2013)
Journal Article

Exploring the provision of social support within a computer-mediated huntington's disease support network (2004)
Journal Article

Objectives: The unique constraints placed upon the Huntington's Disease [HD] carer, and the lack of time and social support identified by this group may make computer-mediated support groups a unique channel of social support for these individuals. T... Read More about Exploring the provision of social support within a computer-mediated huntington's disease support network.