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Co-research with adults with Intellectual Disability: a systematic review

Di Lorito, Claudio; Bosco, Alessandro; Birt, Linda; Hassiotis, Angela

Authors

Alessandro Bosco alessandro.bosco@nottingham.ac.uk

Linda Birt Linda.birt@uea.ac.uk

Angela Hassiotis a.hassiotis@ucl.ac.uk



Abstract

Background. Co-research with people with intellectual disability (ID) is a distinct form of patient and public involvement (PPI). This systematic review summarises published studies and protocols to report on the process of co-research in social and health care research.
Method. Relevant studies were identified using electronic searches on ASSIA, PsycInfo and MedLine. Study quality was assessed and information relevant to the process of working with co-researchers was extracted and thematically analysed.
Results. Thirteen studies were retrieved. Data are reported under three themes: 1) challenges of co-research; 2) facilitators of co-research; 3) benefits of co-research. Best practice is presented as a model of co-research. Content analysis on 12 research protocols identified four themes related to PPI.
Conclusions. All stakeholders involved in co-research with people with ID can benefit, providing there is adequate infrastructure to accommodate and empower the co-researchers. Many current ID research projects still lack systematic involvement of PPI members.

Journal Article Type Article
Publication Date Sep 1, 2018
Journal Journal of Applied Research in Intellectual Disabilities
Print ISSN 1360-2322
Electronic ISSN 1468-3148
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 31
Issue 5
Pages 669-686
APA6 Citation Di Lorito, C., Bosco, A., Birt, L., & Hassiotis, A. (2018). Co-research with adults with Intellectual Disability: a systematic review. Journal of Applied Research in Intellectual Disabilities, 31(5), (669-686). doi:10.1111/jar.12435. ISSN 1360-2322
DOI https://doi.org/10.1111/jar.12435
Keywords Co-research, participatory research, intellectual disability, systematic review, patient and public involvement
Publisher URL https://onlinelibrary.wiley.com/doi/abs/10.1111/jar.12435
Copyright Statement Copyright information regarding this work can be found at the following address: http://eprints.nottingh.../end_user_agreement.pdf
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Copyright Statement
Copyright information regarding this work can be found at the following address: http://eprints.nottingham.ac.uk/end_user_agreement.pdf





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