Development of a Best Practice Guidance on Online Peer Support for People with Young-Onset Dementia

Loseto-Gerritzen, Esther Vera; McDermott, Orii; Orrell, Martin

Abstract

This work aimed to develop a Best Practice Guidance on online peer support for people with young-onset dementia (YOD). The Best Practice Guidance was developed through a systematic literature review, focus groups, an online survey, and interviews and consultations with people with YOD and professionals. The Best Practice Guidance consists of two parts. Part 1 contains information for people with YOD about what online peer support entails, what to expect from it, and how to get involved. Part 2 is aimed at those who facilitate or moderate online peer support (professionals or people with lived experience) and includes guidelines on how to optimize online peer support for people with YOD. The Best Practice Guidance on online peer support provides (1) people with YOD with evidence-based, relevant, and accessible information about what online peer support entails and how it could help them, (2) providers and facilitators with guidelines on how to optimize online peer support for people with YOD, and (3) healthcare professionals with a concise and accessible tool for signposting. Future research is needed to implement and disseminate the Best Practice Guidance among dementia organizations and healthcare practices and should include rigorous studies on the implementation and sustainability of online peer support for people with YOD.

Citation

Loseto-Gerritzen, E. V., McDermott, O., & Orrell, M. (2024). Development of a Best Practice Guidance on Online Peer Support for People with Young-Onset Dementia. Behavioral Sciences, 14(9), Article 746. https://doi.org/10.3390/bs14090746

• Journal Article Type: Article
• Acceptance Date: Aug 23, 2024
• Online Publication Date: Aug 26, 2024
• Publication Date: Aug 26, 2024
• Deposit Date: Sep 2, 2024
• Publicly Available Date: Sep 2, 2024
• Journal: Behavioral Sciences
• Electronic ISSN: 2076-328X
• Publisher: MDPI
• Peer Reviewed: Peer Reviewed
• Volume: 14
• Issue: 9
• Article Number: 746
• DOI: https://doi.org/10.3390/bs14090746
• Keywords: online support, social health, social support, peer support, young-onset dementia
• Public URL: https://nottingham-repository.worktribe.com/output/38913467
• Publisher URL: https://www.mdpi.com/2076-328X/14/9/746