Exploring the role of web-based interventions in the self-management of dementia: Systematic review and narrative synthesis

Lee, Abigail Rebecca; Gerritzen, Esther Vera; McDermott, Orii; Orrell, Martin

Abstract

Background: The increasing prevalence of dementia has promoted a move toward equipping people with the skills required for greater self-management of the condition to enable a better quality of life. Self-management encompasses numerous skills, such as goal setting and decision making, which aim to improve an individual's physical and mental well-being when they live with long-term health conditions. Effective self-management may lead to increased well-being and quality of life. Reviews of web-based and app-based interventions have suggested that they have the potential to provide self-management support for people living with a range of conditions, including dementia. Objective: The aim of this review is to explore the existing use of web-based or app-based interventions that facilitate or support self-management in dementia and discuss their effectiveness in promoting self-management and independence. Methods: A total of 5 electronic databases were systematically searched for relevant articles published between January 2010 and March 2020. Included studies were appraised using the Downs and Black checklist and the Critical Appraisal Skills Program qualitative research checklist. A narrative synthesis framework was applied using tables and conceptual mapping to explore the relationships within and among studies. Results: A total of 2561 articles were identified from the initial search, of which 11 (0.43%) met the inclusion criteria for the final analysis. These included 5 quantitative, 4 mixed methods, and 2 qualitative studies. All the included articles were of fair to high quality across the two appraisal measures. Interventions were delivered through a range of web-based and app-based technologies and targeted several self-management concepts. However, there was inconsistency regarding the domains, often affected by dementia, that were targeted by the interventions reviewed. Conclusions: Web-based and app-based interventions for dementia can be delivered through a range of means and can target different aspects of self-management. The small number of studies included in this review report positive outcomes that seem to support the use of these interventions for people living with dementia. However, there is a clear need for more high-quality research into this type of intervention delivery and for studies that use a much larger number of participants across the dementia spectrum. Future research should consider the barriers to and facilitators of intervention adoption highlighted in this review and whether interventions can encompass the physical, social, cognitive, and emotional domains affected by dementia.

Citation

Lee, A. R., Gerritzen, E. V., McDermott, O., & Orrell, M. (2021). Exploring the role of web-based interventions in the self-management of dementia: Systematic review and narrative synthesis. Journal of Medical Internet Research, 23(7), Article e26551. https://doi.org/10.2196/26551

• Journal Article Type: Article
• Acceptance Date: May 6, 2021
• Online Publication Date: Jul 26, 2021
• Publication Date: Jul 1, 2021
• Deposit Date: Mar 17, 2021
• Publicly Available Date: Jul 1, 2021
• Journal: Journal of Medical Internet Research
• Electronic ISSN: 1438-8871
• Publisher: JMIR Publications Inc.
• Peer Reviewed: Peer Reviewed
• Volume: 23
• Issue: 7
• Article Number: e26551
• DOI: https://doi.org/10.2196/26551
• Keywords: Health Informatics
• Public URL: https://nottingham-repository.worktribe.com/output/5399592
• Publisher URL: https://www.jmir.org/2021/7/e26551