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Emotion-focused care requested by hospital patients with dementia via advance care planning

Petty, Stephanie; Coleston, Donna Maria; Dening, Tom; Griffiths, Amanda


Stephanie Petty

Donna Maria Coleston

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Clinical Professor in Dementia Research

Amanda Griffiths


Background: This study responds to international pressures to improve hospital care for patients with dementia. Aim: To reach a concise overview of ways to improve the emotional wellbeing of patients with dementia when in hospital by exploring their personal care requests. Methods: Written advance care planning (ACP) documents completed by patients with dementia and their caregivers were retrieved from a UK hospital (n=21) and analysed using descriptive phenomenology. Findings: Care requests showed the changeable and personal nature of emotional distress and gave the responses that patients require from hospital staff. Responses included: attending to physical health, offering reassurance, being with the patient, treating the patient as a person and providing a different physical environment. Conclusion: ACP documents offered a structured tool for informing care with succinct, personalised requests of patients with dementia. Patient requests were consistent with extensive literature defining person-centred care. Increased use of ACP in hospitals requires evaluation.


Petty, S., Coleston, D. M., Dening, T., & Griffiths, A. (2020). Emotion-focused care requested by hospital patients with dementia via advance care planning. British Journal of Neuroscience Nursing, 16(1), 29-33.

Journal Article Type Article
Acceptance Date Dec 2, 2019
Online Publication Date Feb 25, 2020
Publication Date Feb 2, 2020
Deposit Date Dec 6, 2019
Publicly Available Date Aug 3, 2020
Journal British Journal of Neuroscience Nursing
Print ISSN 1747-0307
Electronic ISSN 2052-2800
Publisher Mark Allen Healthcare
Peer Reviewed Peer Reviewed
Volume 16
Issue 1
Pages 29-33
Keywords Dementia; hospitals; nursing; emotions; qualitative approaches; general nursing; clinical neurology
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Additional Information This document is the Accepted Manuscript version of a Published Work that appeared in final form in British Journal of Neuroscience Nursing, copyright © MA Healthcare, after peer review and technical editing by the publisher. To access the final edited and published work see


Emotion-focused care requested by hospital patients with dementia: qualitative analysis of advance care planning documents using descriptive phenomenology (1.1 Mb)

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