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Pragmatic, feasibility randomized controlled trial of a recorded mental health recovery narrative intervention: narrative experiences online intervention for informal carers (NEON-C)

Ng, Fiona; Rennick-Egglestone, Stefan; Onwumere, Juliana; Newby, Christopher; Llewellyn-Beardsley, Joy; Yeo, Caroline; Ali, Yasmin; Pollock, Kristian; Kotera, Yasuhiro; Pomberth, Scott; Gavan, Sean P.; van der Krieke, Lian; Robotham, Dan; Gillard, Steve; Thornicroft, Graham; Slade, Mike

Pragmatic, feasibility randomized controlled trial of a recorded mental health recovery narrative intervention: narrative experiences online intervention for informal carers (NEON-C) Thumbnail


Authors

Profile image of FIONA NG

Dr FIONA NG FIONA.NG@NOTTINGHAM.AC.UK
Principal Research Fellow

Juliana Onwumere

Dr CHRISTOPHER NEWBY Christopher.Newby@nottingham.ac.uk
SENIOR QUANTITATIVE METHODS ADVISER AND RESEARCHER

Joy Llewellyn-Beardsley

Yasmin Ali

Kristian Pollock

Scott Pomberth

Sean P. Gavan

Lian van der Krieke

Dan Robotham

Steve Gillard

Graham Thornicroft



Abstract

Introduction: Informal carers of people with mental health problems often have unmet support needs. Mental health recovery narratives are increasingly accessible, but their relevance to and effect on informal carers have been minimally investigated. The Narrative Experiences Online (NEON) Intervention is a first-in-field intervention that provides informal carers with access to a diverse collection of recorded mental health recovery narratives. This trial aimed to examine the feasibility and acceptability of the NEON Intervention for informal carers. Methods: This study involved a two-arm feasibility randomized controlled trial. Carers were randomly assigned to receiving versus not receiving the NEON Intervention. The feasibility aspects investigated included the acceptability of the intervention and of randomization, trial processes, engagement rates, recruitment procedures, attrition, sample size estimation, identification of candidate primary and secondary outcomes, and the feasibility of conducting a definitive trial. A qualitative process evaluation was conducted. Findings: A total of 121 carers were eligible, of whom 54 were randomized (intervention: 27, control: 27). Twelve-month follow-up data were available for 36 carers. Carers accessed a mean of 25 narratives over a 12-month period, and the intervention group, compared with the control group, reported a small effect on hope and a moderate effect on the presence of meaning in life. Five modifications were recommended to improve the user experience, applicability, and trial processes. Discussion: The NEON Intervention is feasible and acceptable. Significant refinement of the NEON Intervention and trial processes is required to personalize and ensure applicability to carers. Further feasibility testing is recommended prior to a definitive trial.

Citation

Ng, F., Rennick-Egglestone, S., Onwumere, J., Newby, C., Llewellyn-Beardsley, J., Yeo, C., Ali, Y., Pollock, K., Kotera, Y., Pomberth, S., Gavan, S. P., van der Krieke, L., Robotham, D., Gillard, S., Thornicroft, G., & Slade, M. (2024). Pragmatic, feasibility randomized controlled trial of a recorded mental health recovery narrative intervention: narrative experiences online intervention for informal carers (NEON-C). Frontiers in Psychiatry, 14, Article 1272396. https://doi.org/10.3389/fpsyt.2023.1272396

Journal Article Type Article
Acceptance Date Dec 14, 2023
Online Publication Date Jan 23, 2024
Publication Date Jan 23, 2024
Deposit Date Dec 15, 2023
Publicly Available Date Dec 15, 2023
Journal Frontiers in Psychiatry
Electronic ISSN 1664-0640
Publisher Frontiers Media
Peer Reviewed Peer Reviewed
Volume 14
Article Number 1272396
DOI https://doi.org/10.3389/fpsyt.2023.1272396
Keywords Mental health, recovery, recovery narratives, carers, NEON Intervention, recommender system, digital health intervention, online intervention
Public URL https://nottingham-repository.worktribe.com/output/28433001
Publisher URL https://www.frontiersin.org/articles/10.3389/fpsyt.2023.1272396/full

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Publisher Licence URL
https://creativecommons.org/licenses/by/4.0/

Copyright Statement
© 2023 Ng, Rennick-Egglestone, Onwumere, Newby, Llewellyn-Beardsley, Yeo, Ali, Pollock, Kotera, Pomberth, Gavan, Van Der Krieke, Robotham, Gillard, Thornicroft and Slade. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.




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