Biographical dialectics: The ongoing and creative problem solving required to negotiate the biographical disruption of chronic illness

Cluley, Victoria; Burton, James; Quann, Niamh; Hull, Katherine; Eborall, Helen

Abstract

Here we propose the term ‘biographical dialectics’ as a sister term to ‘biographical disruption’ to capture the ongoing problem solving that characterises the lives of many people living with life limiting chronic illnesses. The paper is based on the experiences of 35 adults with end-stage kidney disease (ESKD) in receipt of haemodialysis. Photovoice and semi-structured interviews showed that ESKD and the use of haemodialysis was widely agreed to be biographically disruptive. In talking about and showing disruption through photographs the participants' ongoing problem solving was universal across their diverse experiences. ‘Biographical disruption’ and Hegalian dialectical logic, are drawn on to make sense of these actions and to further understand the personal and disruptive experience of chronic illness. Based on this, ‘biographical dialectics’ captures the work that is required to account for and manage the enduring and biographical impact of chronic illness that follows the initial disruption of diagnosis and continues as life progresses.

Citation

Cluley, V., Burton, J., Quann, N., Hull, K., & Eborall, H. (2023). Biographical dialectics: The ongoing and creative problem solving required to negotiate the biographical disruption of chronic illness. Social Science and Medicine, 325, Article 115900. https://doi.org/10.1016/j.socscimed.2023.115900

• Journal Article Type: Article
• Acceptance Date: Apr 8, 2023
• Online Publication Date: Apr 11, 2023
• Publication Date: May 1, 2023
• Deposit Date: Apr 19, 2023
• Publicly Available Date: Apr 19, 2023
• Journal: Social Science and Medicine
• Print ISSN: 0277-9536
• Electronic ISSN: 0277-9536
• Publisher: Elsevier
• Peer Reviewed: Peer Reviewed
• Volume: 325
• Article Number: 115900
• DOI: https://doi.org/10.1016/j.socscimed.2023.115900
• Keywords: Biographical disruption; Chronic illness; Haemodialysis; End-stage kidney disease; Self-management
• Public URL: https://nottingham-repository.worktribe.com/output/19781911
• Publisher URL: https://www.sciencedirect.com/science/article/pii/S0277953623002575?via%3Dihub