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Experience of Identity Change in People Who Reported a Diagnosis of Multiple Sclerosis : A Qualitative Inquiry

Barker, Alexander B.; Smale, Kathryn; Hunt, Nigel; Lincoln, Nadina B.; das Nair, Roshan

Authors

Kathryn Smale

NIGEL HUNT NIGEL.HUNT@NOTTINGHAM.AC.UK
Associate Professor

Nadina B. Lincoln

ROSHAN NAIR Roshan.dasnair@nottingham.ac.uk
Professor of Clinical Psychology and Neuropsychology



Abstract

Background: A diagnosis of multiple sclerosis (MS) can lead to changes to a person’s sense of self. The aim of this study was to investigate the subjective experience of identity change and subsequent adjustment to MS.
Methods: Semi-structured interviews were conducted with 16 people who reported having MS. Interviews were analysed using thematic analysis.
Results: In the early stages of the disease progression, participants wished to compartmentalise the disease. Over time, through reflected self-appraisals, brought about by increasing symptoms and changed relationships with others, the disease became a part of participants’ self-identity.
Conclusions: For people with MS, incorporating and accepting the disease as part of their self-identity can have positive implications for seeking and receiving support.

Citation

Barker, A. B., Smale, K., Hunt, N., Lincoln, N. B., & das Nair, R. (2019). Experience of Identity Change in People Who Reported a Diagnosis of Multiple Sclerosis : A Qualitative Inquiry. International Journal of Ms Care, 21(5), 235-242. https://doi.org/10.7224/1537-2073.2018-069

Journal Article Type Article
Acceptance Date Feb 10, 2019
Online Publication Date Sep 1, 2019
Publication Date Sep 1, 2019
Deposit Date Feb 12, 2019
Publicly Available Date Sep 2, 2020
Journal 1537-2073
Print ISSN 1537-2073
Peer Reviewed Peer Reviewed
Volume 21
Issue 5
Pages 235-242
DOI https://doi.org/10.7224/1537-2073.2018-069
Keywords Multiple Sclerosis (MS); Self; Rehabilitation < Adaptation; Coping; Enduring; Psychology; 10
Public URL https://nottingham-repository.worktribe.com/output/1536753
Publisher URL https://ijmsc.org/doi/10.7224/1537-2073.2018-069

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