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The German RECAP questionnaire: linguistic validation and cognitive debriefing in German adults with self-reported atopic eczema and parents of affected children

Gabes, Michaela; Tischer, Christina; Herrmann, Anne; Howells, Laura; Apfelbacher, Christian

The German RECAP questionnaire: linguistic validation and cognitive debriefing in German adults with self-reported atopic eczema and parents of affected children Thumbnail


Authors

Michaela Gabes

Christina Tischer

Anne Herrmann

LAURA HOWELLS LAURA.HOWELLS1@NOTTINGHAM.AC.UK
Senior Research Fellow

Christian Apfelbacher



Abstract

Background
Recap of atopic eczema (RECAP) is a patient-reported outcome measure (PROM) assessing eczema control. Long-term control of eczema is one of the four core outcome domains for atopic eczema trials. This instrument has been recently developed in the UK.

Objective
This study aimed to translate the English RECAP into German and test its content validity in a German population with self-reported atopic eczema.

Methods
A six-step procedure including two forward and one backward translations, two consensus decisions and an expert review was performed to obtain a German version of RECAP. We conducted semi-standardized cognitive interviews with adults with atopic eczema (n = 7) and parents having children affected by this disease (n = 5). A “think-aloud” method was used and aspects of comprehensibility, comprehensiveness and relevance according to the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) criteria were examined. Interviews were coded using qualitative content analysis.

Results
No particular linguistic problems were encountered during forward-backward translation. Minor wording changes were made as required. The title was adjusted to a more familiar German term of the disease (which is ‘Neurodermitis’). The recall period was rephrased from ‘over the last week’ to ‘over the last seven days’ since there was a different cultural understanding of the time frame. Regarding content validity, the items of the German RECAP were considered to be comprehensible, comprehensive and relevant for the participants and parents of affected children. The participants understood the instruction and considered the one-week recall period and the response options as appropriate.

Conclusions
A German version of RECAP that is linguistically equivalent to the original version is now available but further assessment of its measurement properties is needed.

Journal Article Type Article
Acceptance Date Jan 7, 2021
Online Publication Date Jan 21, 2021
Publication Date 2021-12
Deposit Date Nov 21, 2022
Publicly Available Date Nov 21, 2022
Journal Journal of Patient-Reported Outcomes
Print ISSN 2509-8020
Electronic ISSN 2509-8020
Publisher SpringerOpen
Peer Reviewed Peer Reviewed
Volume 5
Issue 1
Article Number 13
DOI https://doi.org/10.1186/s41687-021-00285-2
Public URL https://nottingham-repository.worktribe.com/output/14028817
Publisher URL https://jpro.springeropen.com/articles/10.1186/s41687-021-00285-2