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All Outputs (18)

Understanding Quality of Life for People with Motor Neurone Disease Who Use Tracheostomy Ventilation and Family Members: A Scoping Review (2024)
Journal Article
Turner, N., Faull, C., Palmer, J., Armstrong, A., Bedford, J., Turner, M. R., & Wilson, E. (2024). Understanding Quality of Life for People with Motor Neurone Disease Who Use Tracheostomy Ventilation and Family Members: A Scoping Review. Brain Sciences, 14(8), Article 821. https://doi.org/10.3390/brainsci14080821

Tracheostomy ventilation (TV) can increase survival time for people living with motor neurone disease (MND); however, the use of TV varies between countries. Concerns regarding anticipated quality of life (QoL) are among the reasons given by healthca... Read More about Understanding Quality of Life for People with Motor Neurone Disease Who Use Tracheostomy Ventilation and Family Members: A Scoping Review.

‘Beyond the Reach of Palliative Care’: A Qualitative Study of Patient and Public Experiences and Anticipation of Death and Dying (2024)
Journal Article
Pollock, K., Caswell, G., Turner, N., & Wilson, E. (2024). ‘Beyond the Reach of Palliative Care’: A Qualitative Study of Patient and Public Experiences and Anticipation of Death and Dying. Qualitative Health Research, https://doi.org/10.1177/10497323241246705

The demands and costs of health care resulting from increasingly ageing populations have become a major public health issue in the United Kingdom and other industrially developed nations. Concern with cost containment and shortage of resources has pr... Read More about ‘Beyond the Reach of Palliative Care’: A Qualitative Study of Patient and Public Experiences and Anticipation of Death and Dying.

Integration of primary care and palliative care services to improve equality and equity at the end-of-life: Findings from realist stakeholder workshops (2024)
Journal Article
Mitchell, S., Turner, N., Fryer, K., Aunger, J., Beng, J., Couchman, E., Leach, I., Bayly, J., Gardiner, C., Sleeman, K. E., & Evans, C. J. (2024). Integration of primary care and palliative care services to improve equality and equity at the end-of-life: Findings from realist stakeholder workshops. Palliative Medicine, 38(8), 830-841. https://doi.org/10.1177/02692163241248962

Background:
Inequalities in access to palliative and end of life care are longstanding. Integration of primary and palliative care has the potential to improve equity in the community. Evidence to inform integration is scarce as research that consid... Read More about Integration of primary care and palliative care services to improve equality and equity at the end-of-life: Findings from realist stakeholder workshops.

Expanding Qualitative Interviewing for Studies Involving Adults With Different Communication Needs: Reflections on Research With People Living With Motor Neurone Disease (2024)
Journal Article
Wilson, E., & Turner, N. (2024). Expanding Qualitative Interviewing for Studies Involving Adults With Different Communication Needs: Reflections on Research With People Living With Motor Neurone Disease. International Journal of Qualitative Methods, 23, https://doi.org/10.1177/16094069241251537

This article explores the challenges and adaptations we undertook to engage people with different communication needs, specifically those living with motor neurone disease (MND), in qualitative research interviews. While interviewing those in advance... Read More about Expanding Qualitative Interviewing for Studies Involving Adults With Different Communication Needs: Reflections on Research With People Living With Motor Neurone Disease.

A framework for more equitable, diverse, and inclusive Patient and Public Involvement for palliative care research (2024)
Journal Article
Mitchell, S., Turner, N., Fryer, K., Beng, J., Ogden, M. E., Watson, M., Gardiner, C., Bayly, J., Sleeman, K. E., & Evans, C. J. (2024). A framework for more equitable, diverse, and inclusive Patient and Public Involvement for palliative care research. Research Involvement and Engagement, 10(1), Article 19. https://doi.org/10.1186/s40900-023-00525-3

Background: There are marked inequalities in palliative care provision. Research is needed to understand how such inequalities can be addressed, so that everyone living with advanced illness can receive the care they need, when they need it. Research... Read More about A framework for more equitable, diverse, and inclusive Patient and Public Involvement for palliative care research.

Understanding patient views and experiences of the IDENTIfication of PALLiative care needs (IDENTI-PALL): a qualitative interview study (2024)
Journal Article
Leach, I., Mayland, C. R., Turner, N., & Mitchell, S. (2024). Understanding patient views and experiences of the IDENTIfication of PALLiative care needs (IDENTI-PALL): a qualitative interview study. British Journal of General Practice, 74(739), e88-e95. https://doi.org/10.3399/BJGP.2023.0071

Background Palliative care improves quality of life for people with life-threatening illnesses. There are longstanding inequalities in access to palliative care, with many people never identified as having palliative care needs, particularly frail ol... Read More about Understanding patient views and experiences of the IDENTIfication of PALLiative care needs (IDENTI-PALL): a qualitative interview study.

Understanding living with tracheostomy ventilation for motor neuron disease and the implications for quality of life: a qualitative study protocol (2023)
Journal Article
Wilson, E., Turner, N., Faull, C., Palmer, J., Turner, M. R., & Davidson, S. (2023). Understanding living with tracheostomy ventilation for motor neuron disease and the implications for quality of life: a qualitative study protocol. BMJ Open, 13(3), Article e071624. https://doi.org/10.1136/bmjopen-2023-071624

Introduction: Home mechanical ventilation can be used to manage symptoms of breathlessness and sustain life for people living with motor neuron disease (plwMND). In the UK, less than 1% of plwMND use tracheostomy ventilation (TV). This contrasts with... Read More about Understanding living with tracheostomy ventilation for motor neuron disease and the implications for quality of life: a qualitative study protocol.

Role and response of primary healthcare services in community end-of-life care during COVID-19: Qualitative study and recommendations for primary palliative care delivery (2022)
Journal Article
Turner, N., Wahid, A., Oliver, P., Gardiner, C., Chapman, H., Khan, D., …Mitchell, S. J. (2023). Role and response of primary healthcare services in community end-of-life care during COVID-19: Qualitative study and recommendations for primary palliative care delivery. Palliative Medicine, 37(2), 235-243. https://doi.org/10.1177/02692163221140435

Background: The need for end-of-life care in the community increased significantly during the COVID-19 pandemic. Primary care services, including general practitioners and community nurses, had a critical role in providing such care, rapidly changing... Read More about Role and response of primary healthcare services in community end-of-life care during COVID-19: Qualitative study and recommendations for primary palliative care delivery.

‘It’s Not Like in the Films’: Bereaved People’s Experiences of the Deathbed Vigil (2022)
Journal Article
Caswell, G., Wilson, E., Turner, N., & Pollock, K. (2022). ‘It’s Not Like in the Films’: Bereaved People’s Experiences of the Deathbed Vigil. OMEGA - Journal of Death and Dying, https://doi.org/10.1177/00302228221133413

This paper explores how people enact and experience the deathbed vigil when someone close to them is dying. It draws on qualitative interviews with 34 bereaved people carried out as part of a wider study exploring public perceptions of death and dyin... Read More about ‘It’s Not Like in the Films’: Bereaved People’s Experiences of the Deathbed Vigil.

Understanding patient views and experiences of the IDENTIfication of PALLiative care needs (IDENTI-Pall): a qualitative interview study protocol (2022)
Journal Article
Mitchell, S., Leach, I., Turner, N., & Mayland, C. R. (2022). Understanding patient views and experiences of the IDENTIfication of PALLiative care needs (IDENTI-Pall): a qualitative interview study protocol. BMJ Open, 12(6), Article e062500. https://doi.org/10.1136/bmjopen-2022-062500

Introduction More people are living with multimorbidity, defined as two or more long-term physical or mental health conditions. Multimorbidity is associated with poor quality of life and high treatment burden. Palliative care identification tools hav... Read More about Understanding patient views and experiences of the IDENTIfication of PALLiative care needs (IDENTI-Pall): a qualitative interview study protocol.

Ethical challenges in researching and telling the stories of recently deceased people (2020)
Journal Article
Caswell, G., & Turner, N. (2021). Ethical challenges in researching and telling the stories of recently deceased people. Research Ethics, 17(2), 162-175. https://doi.org/10.1177/1747016120952503

© The Author(s) 2020. This paper explores ethical challenges encountered when conducting research about, and telling, the stories of individuals who had died before the research began. Cases were explored where individuals who lived alone had died al... Read More about Ethical challenges in researching and telling the stories of recently deceased people.

‘My life's properly beginning’: young people with a terminally ill parent talk about the future (2020)
Journal Article
Turner, N. (2020). ‘My life's properly beginning’: young people with a terminally ill parent talk about the future. Sociology of Health and Illness, 42(5), 1171-1183. https://doi.org/10.1111/1467-9566.13086

This paper explores how young people who are living with a parent who is dying talk about the future. Drawing on a qualitative, interview study, I argue that young people are able to move imaginatively beyond the death of a parent, and in doing so, t... Read More about ‘My life's properly beginning’: young people with a terminally ill parent talk about the future.

Moral ambiguity in media reports of dying alone (2019)
Journal Article
Turner, N., & Caswell, G. (2020). Moral ambiguity in media reports of dying alone. Mortality, 25(3), 266-281. https://doi.org/10.1080/13576275.2019.1657388

More older people are living alone in the UK, thereby increasing the prospect of dying alone at home. Lone deaths tend to be regarded as bad deaths, in that they contravene notions of accompaniment and open awareness espoused in UK end of life care p... Read More about Moral ambiguity in media reports of dying alone.

‘Going the extra mile’ for older people with dementia: Exploring the voluntary labour of homecare workers (2018)
Journal Article
Turner, N., Schneider, J., Pollock, K., Travers, C., Perry-Young, L., & Wilkinson, S. (2018). ‘Going the extra mile’ for older people with dementia: Exploring the voluntary labour of homecare workers. Dementia, https://doi.org/10.1177/1471301218817616

Homecare workers provide essential physical, social and emotional support to growing numbers of older people with dementia in the UK. Although it is acknowledged that the work can sometimes be demanding, some homecare workers regularly ‘go the extra... Read More about ‘Going the extra mile’ for older people with dementia: Exploring the voluntary labour of homecare workers.

Troubling meanings of family and competing moral imperatives in the family lives of young people with a parent who is at the end of life (2017)
Journal Article
Turner, N., & Almack, K. (in press). Troubling meanings of family and competing moral imperatives in the family lives of young people with a parent who is at the end of life. Children's Geographies, https://doi.org/10.1080/14733285.2017.1350633

This article draws on a narrative study of young people with a parent who is at the end of life to examine how family lives are troubled by life-limiting parental illness. Young people struggled to reconcile the physical and emotional absence of fami... Read More about Troubling meanings of family and competing moral imperatives in the family lives of young people with a parent who is at the end of life.

Young people's perspectives on open communication between family members when a parent is dying (2017)
Journal Article
Turner, N. (2017). Young people's perspectives on open communication between family members when a parent is dying. Palliative and Supportive Care, https://doi.org/10.1017/S1478951517000578

Objective: Living with a parent who is approaching the end of life is profoundly troubling for young people. Research indicates that family communication about life-limiting parental illness can influence how young people manage living with dying. In... Read More about Young people's perspectives on open communication between family members when a parent is dying.

Recruiting young people to sensitive research: turning the ‘wheels within wheels’ (2016)
Journal Article
Turner, N., & Almack, K. (2017). Recruiting young people to sensitive research: turning the ‘wheels within wheels’. International Journal of Social Research Methodology, 20(5), 485-497. https://doi.org/10.1080/13645579.2016.1207943

This article explores the difficulties encountered in recruiting participants for a study of young people living with a parent at the end of life. Far from being a smooth, linear process, recruitment was experienced as a series of overlapping challen... Read More about Recruiting young people to sensitive research: turning the ‘wheels within wheels’.