NICOLA TURNER Nicola.Turner5@nottingham.ac.uk
Senior Research Fellow
Understanding Quality of Life for People with Motor Neurone Disease Who Use Tracheostomy Ventilation and Family Members: A Scoping Review
Turner, Nicola; Faull, Christina; Palmer, Jonathan; Armstrong, Alison; Bedford, Jennifer; Turner, Martin R.; Wilson, Eleanor
Authors
Christina Faull
Jonathan Palmer
Alison Armstrong
Jennifer Bedford
Martin R. Turner
Dr. ELEANOR WILSON eleanor.wilson@nottingham.ac.uk
Principal Research Fellow
Abstract
Tracheostomy ventilation (TV) can increase survival time for people living with motor neurone disease (MND); however, the use of TV varies between countries. Concerns regarding anticipated quality of life (QoL) are among the reasons given by healthcare professionals for not recommending this intervention, yet little is known about QoL in this context. This scoping review was conducted to examine the evidence on QoL for those with MND who use TV and family members involved in their care. Using the methodological guidance of the Joanna Briggs Institute, 23 papers were identified for inclusion, and findings were inductively analysed to identify key themes. We found that people living with MND tend to rate QoL post TV more positively than anticipated by healthcare professionals or family members. QoL was found to be related to positive relationships and activities the person could maintain. Feeling able to make a choice and an adequate level of financial resources were also important factors. Family members tended to experience lower QoL, associated with the uncertainty surrounding an emergency procedure and the complexity of subsequently required care. More evidence on QoL from the perspectives of people with MND who use TV is needed to support decision making and inform guidance.
Citation
Turner, N., Faull, C., Palmer, J., Armstrong, A., Bedford, J., Turner, M. R., & Wilson, E. (2024). Understanding Quality of Life for People with Motor Neurone Disease Who Use Tracheostomy Ventilation and Family Members: A Scoping Review. Brain Sciences, 14(8), Article 821. https://doi.org/10.3390/brainsci14080821
Journal Article Type | Article |
---|---|
Acceptance Date | Aug 14, 2024 |
Online Publication Date | Aug 16, 2024 |
Publication Date | Aug 16, 2024 |
Deposit Date | Aug 20, 2024 |
Publicly Available Date | Aug 20, 2024 |
Journal | Brain Sciences |
Electronic ISSN | 2076-3425 |
Publisher | MDPI |
Peer Reviewed | Peer Reviewed |
Volume | 14 |
Issue | 8 |
Article Number | 821 |
DOI | https://doi.org/10.3390/brainsci14080821 |
Keywords | motor neurone disease; amyotrophic lateral sclerosis; tracheostomy ventilation; invasive ventilation; quality of life; wellbeing; family care |
Public URL | https://nottingham-repository.worktribe.com/output/38383834 |
Publisher URL | https://www.mdpi.com/2076-3425/14/8/821 |
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https://creativecommons.org/licenses/by/4.0/
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