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All Outputs (104)

How do online patient support communities affect the experience of inflammatory bowel disease?: an online survey (2013)
Journal Article
Coulson, N. S. (2013). How do online patient support communities affect the experience of inflammatory bowel disease?: an online survey. JRSM Short Reports, 4(8), Article 9. https://doi.org/10.1177/2042533313478004

Objective: To explore how participation in an online support community may impact upon the experience of inflammatory bowel disease (IBD). Design: An online survey. Setting: Study participants recruited through 35 IBD online communities.... Read More about How do online patient support communities affect the experience of inflammatory bowel disease?: an online survey.

Sharing, supporting and sobriety: A qualitative analysis of messages posted to alcohol-related online discussion forums in the United Kingdom (2013)
Journal Article
Coulson, N. S. (2014). Sharing, supporting and sobriety: A qualitative analysis of messages posted to alcohol-related online discussion forums in the United Kingdom. Journal of Substance Use, 19(1-2), 176-180. https://doi.org/10.3109/14659891.2013.765516

Background: In recent years there has been an exponential growth in the number of people accessing online discussion forums for information, advice and support in relation to a range of both acute and chronic health issues. However, there has been li... Read More about Sharing, supporting and sobriety: A qualitative analysis of messages posted to alcohol-related online discussion forums in the United Kingdom.

Nurturing health-related online support groups: Exploring the experiences of patient moderators (2013)
Journal Article
Coulson, N. S., & Shaw, R. L. (2013). Nurturing health-related online support groups: Exploring the experiences of patient moderators. Computers in Human Behavior, 29(4), 1695-1701. https://doi.org/10.1016/j.chb.2013.02.003

The aim of this study was to examine the views of moderators across a diverse and geographically broad range of online support groups about their moderator experiences and to explore both the personal benefits as well as challenges involved. Thirty-t... Read More about Nurturing health-related online support groups: Exploring the experiences of patient moderators.

Coming to terms with permanent involuntary childlessness: A phenomenological analysis of bulletin board postings (2013)
Journal Article
Malik, S. H., & Coulson, N. S. (2013). Coming to terms with permanent involuntary childlessness: A phenomenological analysis of bulletin board postings. Europe's Journal of Psychology, 9(1), 77-92. https://doi.org/10.5964/ejop.v9i1.534

Little is known about the role that online support communities play in the lives of women faced with permanent involuntary childlessness. To understand the experiences of these women, this study conducted a thematic analysis of messages downloaded fr... Read More about Coming to terms with permanent involuntary childlessness: A phenomenological analysis of bulletin board postings.

Empowering processes within prostate cancer online support groups (2013)
Journal Article
Campbell, K. A., Coulson, N. S., & Buchanan, H. (2013). Empowering processes within prostate cancer online support groups. International Journal of Web Based Communities, 9(1), 51-66. https://doi.org/10.1504/IJWBC.2013.051294

A growing body of literature suggests that participation in online support groups may empower patients. Indeed, a number of potentially empowering processes have been identified, however to date these processes have been described using data derived... Read More about Empowering processes within prostate cancer online support groups.

Health-related online support communities (2012)
Book Chapter
Coulson, N. S., & Malik, S. (2012). Health-related online support communities. In Encyclopedia of Cyber Behavior (671-688). IGI Global. https://doi.org/10.4018/978-1-4666-0315-8.ch057

In recent years, the Internet has provided new opportunities for individuals living with health-related problems to communicate with each other via online support communities. These communities offer many unique advantages, such as convenience, anony... Read More about Health-related online support communities.

Families affected by childhood cancer: An analysis of the provision of social support within online support groups (2012)
Journal Article
Coulson, N. S., & Greenwood, N. (2012). Families affected by childhood cancer: An analysis of the provision of social support within online support groups. Child: Care, Health and Development, 38(6), 870-877. https://doi.org/10.1111/j.1365-2214.2011.01316.x

Background With increasing access to the Internet, there are new opportunities available to families to seek information, advice and support about childhood cancer online. Methods A total of 487 messages were retrieved from three childhood cancer onl... Read More about Families affected by childhood cancer: An analysis of the provision of social support within online support groups.

The effects of label design characteristics on perceptions of genetically modified food (2011)
Journal Article
Hellier, E., Tucker, M., Newbold, L., Edworthy, J., Griffin, J., & Coulson, N. (2012). The effects of label design characteristics on perceptions of genetically modified food. Journal of Risk Research, 15(5), 533-545. https://doi.org/10.1080/13669877.2011.646288

Objective. To explore the effects on perceptions of labelling food for genetically modified content. Background: there is increasing public pressure for the compulsory labelling of genetically modified food content on all food products, and yet littl... Read More about The effects of label design characteristics on perceptions of genetically modified food.

A thematic analysis of patient communication in Parkinson's disease online support group discussion forums (2011)
Journal Article
Attard, A., & Coulson, N. S. (2012). A thematic analysis of patient communication in Parkinson's disease online support group discussion forums. Computers in Human Behavior, 28(2), 500-506. https://doi.org/10.1016/j.chb.2011.10.022

Online support groups have become a popular source of information, advice and support for individuals living with a range of health conditions. However, research has not commonly focused on patients living with Parkinson's disease and their use of on... Read More about A thematic analysis of patient communication in Parkinson's disease online support group discussion forums.

The therapeutic potential of the internet: Exploring self-help processes in an internet forum for young people with inflammatory bowel disease (2011)
Journal Article
Malik, S., & Coulson, N. S. (2011). The therapeutic potential of the internet: Exploring self-help processes in an internet forum for young people with inflammatory bowel disease. Gastroenterology Nursing, 34(6), 439-448. https://doi.org/10.1097/SGA.0b013e318237a9ba

The Internet has provided new opportunities for young people with inflammatory bowel disease to access diverse information and support, and communicate with fellow sufferers through the means of online patient support groups. The study presented in t... Read More about The therapeutic potential of the internet: Exploring self-help processes in an internet forum for young people with inflammatory bowel disease.

A comparison of lurkers and posters within infertility online support groups (2011)
Journal Article
Malik, S. H., & Coulson, N. S. (2011). A comparison of lurkers and posters within infertility online support groups. Computers, Informatics, Nursing, 29(10), 564-573. https://doi.org/10.1097/NCN.0b013e318224b31d

Current research shows that online support groups can offer people affected by infertility a unique and valuable source of social support. However, to date most research has focused on the experiences of people who post messages to online infertility... Read More about A comparison of lurkers and posters within infertility online support groups.

Developing a model for online support group use, empowering processes and psychosocial outcomes for individuals living with HIV/AIDS (2011)
Journal Article
Mo, P. K., & Coulson, N. S. (2012). Developing a model for online support group use, empowering processes and psychosocial outcomes for individuals living with HIV/AIDS. Psychology and Health, 27(4), 445-459. https://doi.org/10.1080/08870446.2011.592981

This study examined the mechanism through which online support group (OSG) participation may promote patient empowerment among 340 individuals living with HIV/AIDS. Results from structural equation modelling revealed that greater use of OSGs was asso... Read More about Developing a model for online support group use, empowering processes and psychosocial outcomes for individuals living with HIV/AIDS.

Health-related internet support groups and dental anxiety: The fearful patient's online journey (2010)
Journal Article
Buchanan, H., Coulson, N. S., & Malik, S. (2010). Health-related internet support groups and dental anxiety: The fearful patient's online journey. International Journal of Web Based Communities, 6(4), 362-375. https://doi.org/10.1504/IJWBC.2010.035839

Dental fear and anxiety is a common problem affecting many individuals but for some the problem is more severe. This study examined the discussions which took place between members of a dental anxiety/phobia internet support group. A total of 621 mes... Read More about Health-related internet support groups and dental anxiety: The fearful patient's online journey.

Adolescents living with cancer: The role of computer-mediated support groups (2010)
Journal Article
Elwell, L., Grogan, S., & Coulson, N. (2011). Adolescents living with cancer: The role of computer-mediated support groups. Journal of Health Psychology, 16(2), 236-248. https://doi.org/10.1177/1359105310371398

The present study sought to explore the types of social support being provided to adolescents with cancer accessing a computer-mediated support group. Three hundred and ninety-three messages posted to a computer-mediated support group aimed at adoles... Read More about Adolescents living with cancer: The role of computer-mediated support groups.

An investigation into the empowerment effects of using online support groups and how this affects health professional/patient communication (2010)
Journal Article
Bartlett, Y. K., & Coulson, N. S. (2011). An investigation into the empowerment effects of using online support groups and how this affects health professional/patient communication. Patient Education and Counseling, 83(1), 113-119. https://doi.org/10.1016/j.pec.2010.05.029

Objective: The current research investigates the potential of online support groups (OSGs) to foster empowerment and how membership might affect the patient/health professional relationship. Methods: 246 participants across 33 OSGs completed an onlin... Read More about An investigation into the empowerment effects of using online support groups and how this affects health professional/patient communication.

Empowering processes in online support groups among people living with HIV/AIDS: A comparative analysis of 'lurkers' and 'posters' (2010)
Journal Article
Mo, P. K., & Coulson, N. S. (2010). Empowering processes in online support groups among people living with HIV/AIDS: A comparative analysis of 'lurkers' and 'posters'. Computers in Human Behavior, 26(5), 1183-1193. https://doi.org/10.1016/j.chb.2010.03.028

The proliferation of online support groups provides an opportunity for individuals living with HIV/AIDS to obtain support online. The present study aimed to explore how different levels of participation in online support groups are associated with em... Read More about Empowering processes in online support groups among people living with HIV/AIDS: A comparative analysis of 'lurkers' and 'posters'.

Living with HIV/AIDS and use of online support groups (2010)
Journal Article
Mo, P. K., & Coulson, N. S. (2010). Living with HIV/AIDS and use of online support groups. Journal of Health Psychology, 15(3), 339-350. https://doi.org/10.1177/1359105309348808

The present study explores the association between online support group use and health status, coping and social support among 640 individuals with HIV/AIDS. Results suggested that frequent users tended to be female, younger, single, and in a more ad... Read More about Living with HIV/AIDS and use of online support groups.

'They all supported me but I felt like I suddenly didn't belong anymore': An exploration of perceived disadvantages to online support seeking (2010)
Journal Article
Malik, S., & Coulson, N. S. (2010). 'They all supported me but I felt like I suddenly didn't belong anymore': An exploration of perceived disadvantages to online support seeking. Journal of Psychosomatic Obstetrics and Gynecology, 31(3), 140-149. https://doi.org/10.3109/0167482X.2010.504870

In recent years, there has been a significant rise in the number of online support communities dedicated to issues surrounding infertility. The aim of this study was to focus on investigating the perceived disadvantages of online infertility support... Read More about 'They all supported me but I felt like I suddenly didn't belong anymore': An exploration of perceived disadvantages to online support seeking.

Coping with infertility online: An examination of self-help mechanisms in an online infertility support group (2010)
Journal Article
Malik, S. H., & Coulson, N. S. (2010). Coping with infertility online: An examination of self-help mechanisms in an online infertility support group. Patient Education and Counseling, 81(2), 315-318. https://doi.org/10.1016/j.pec.2010.01.007

Objective: To examine communication within an online infertility support group. Methods: A content analysis of 3500 messages posted to infertility bulletin boards. Results: The most frequently used self-help mechanisms were support or empathy (45.5%)... Read More about Coping with infertility online: An examination of self-help mechanisms in an online infertility support group.