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A qualitative study exploring how stroke survivors’ expectations and understanding of stroke Early Supported Discharge shaped their experience and engagement with the service

Cameron, Trudi M.; Koller, Kristina; Byrne, Adrian; Chouliara, Niki; Robinson, Thompson; Langhorne, Peter; Walker, Marion; Fisher, Rebecca J.

A qualitative study exploring how stroke survivors’ expectations and understanding of stroke Early Supported Discharge shaped their experience and engagement with the service Thumbnail


Authors

Kristina Koller

Adrian Byrne

Thompson Robinson

Peter Langhorne

Marion Walker

Rebecca J. Fisher



Contributors

Kristina Koller
Researcher

Adrian Byrne
Data Collector

Thompson Robinson
Editor

Langhorne Peter
Editor

Marion Walker
Editor

Rebecca Fisher
Editor

Abstract

Purpose
To explore how stroke survivors’ expectations and understanding of Early Supported Discharge (ESD) helped them make sense of their experiences, and shaped their engagement with the service.

Methods
Data were collected as part of a study of large-scale implementation of stroke ESD: the WISE realist mixed-methods study. Semi-structured interviews were conducted with five purposefully selected stroke survivors from six sites in England implementing stroke ESD (n = 30). Participants were aged 32–88 years (20 males). Interviews were audio recorded, transcribed verbatim and transcripts were analysed using reflexive thematic analysis.

Results
Three overarching themes were identified: (1) ESD as a post-stroke recovery tool, (2) desire to recover quickly, (3) psychosocial impact and support. Stroke survivors were uncertain about what to expect when they first entered the service, however, their experience of ESD exceeded their expectations and increased their engagement with the service. Stroke survivors especially valued the goal-oriented approach the team adopted. Rehabilitation at home was perceived as positive and practical, encouraging independence within real-life contexts. Psycho-social support played an important role in the stroke survivors’ rehabilitation.

Conclusions
Ensuring stroke survivors are fully informed about ESD and what to expect, optimises engagement with the services, improves experience and could enhance outcomes.IMPLICATIONS FOR REHABILITATION Informing stroke survivors about what to expect from ESD services could optimise engagement and improve their experience. The provision of personalised and target focussed therapy at home improves stroke survivors’ experience and could potentially accelerate recovery. Preparing stroke survivors early for discharge from ESD can reduce anxiety and enhance engagement with the service.

Journal Article Type Article
Acceptance Date Jul 10, 2022
Online Publication Date Jul 27, 2022
Deposit Date Aug 4, 2022
Publicly Available Date Aug 4, 2022
Journal Disability and Rehabilitation
Print ISSN 0963-8288
Electronic ISSN 1464-5165
Publisher Informa UK Limited
Peer Reviewed Peer Reviewed
Volume 45
Issue 16
Pages 2604-2611
DOI https://doi.org/10.1080/09638288.2022.2102251
Keywords Rehabilitation
Public URL https://nottingham-repository.worktribe.com/output/9585526
Publisher URL https://www.tandfonline.com/doi/full/10.1080/09638288.2022.2102251

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