Trying to solve the ‘worst situation’ together: participatory autism research

Costley, D.M.; Emerson, A.; Ropar, D.; Sheppard, E.; McCubbing, A.; Campbell Bass, S.; Dent, S.; Ellis, R.; Limer, S.; Phillips, S.; Ward Penny, J.

Abstract

The importance of participatory autism research is discussed in relation to a project involving six autistic researchers and five non-autistic university researchers collaborating to investigate anxiety in autistic adolescents. The paper describes the process of establishing a research partnership and the values and philosophy behind this inclusive method of research. Lessons were learnt about neurodivergent thinking and the benefits it brings to the development of research questions and analysis of data.

Citation

Costley, D., Emerson, A., Ropar, D., Sheppard, E., McCubbing, A., Campbell Bass, S., Dent, S., Ellis, R., Limer, S., Phillips, S., & Ward Penny, J. (2022). Trying to solve the ‘worst situation’ together: participatory autism research. Educational Action Research, 1-18. https://doi.org/10.1080/09650792.2021.2019075

• Journal Article Type: Article
• Acceptance Date: Dec 5, 2021
• Online Publication Date: Mar 17, 2022
• Publication Date: Mar 17, 2022
• Deposit Date: May 17, 2022
• Publicly Available Date: May 18, 2022
• Journal: Educational Action Research
• Print ISSN: 0965-0792
• Electronic ISSN: 1747-5074
• Publisher: Routledge
• Peer Reviewed: Peer Reviewed
• Pages: 1-18
• DOI: https://doi.org/10.1080/09650792.2021.2019075
• Keywords: Education
• Public URL: https://nottingham-repository.worktribe.com/output/7611216
• Publisher URL: https://www.tandfonline.com/doi/full/10.1080/09650792.2021.2019075