Bringing the voice of social housing tenants into shaping the health and care research agenda

Phillips, Olivia R.; Mardell, Denise; Stephenson, Kolin; Hussain, Sabrina; Burton, Dawn; Bernard, Barbara; Stevenson, Sue; Morling, Joanne R.

Abstract

Background: A larger percentage of social housing tenants have poorer physical and mental health outcomes compared to private renters and homeowners. They are also at a greater risk of respiratory conditions, cardiovascular disease, communicable disease transmission and mortality. One approach that aims to reduce health inequalities is to create research partnerships with underserved local communities. Our primary aim was to develop a research partnership with social housing tenants in Nottingham and our secondary aim was to explore the health priorities of these social housing tenants to inform future research applications. We also hope to provide a descriptive process of PPI within a social housing context for other researchers to learn from. Methods: We used Public and Patient Involvement (PPI) as the foundation of this work, as we believed that people with lived experience of social housing, also end-users of the research, were best placed to inform us of the areas with the greatest research need. Through online and in-person focus groups, we discussed with tenants, collectively named a Social Advisory Group (SAG), their health concerns and priorities. Together they raised 26 health issues, which were combined with 22 funding opportunity themes being offered by the NIHR (National Institute for Health and Care Research). This was with the purpose of investigating whether there was alignment between the health needs of Nottingham’s social housing tenants and the NIHR’s research priorities. A prioritisation technique (Diamond Nine) was used to sort in total, 48 areas of health and wellbeing, into three top priorities. Tenants were provided the opportunity to be involved in public health research in other ways too, such as reviewing this paper and also an NIHR Programme Development Grant application to expand and continue this work. One was also offered the opportunity to be a public co-applicant. Results: The group prioritised improvements in the quality of social housing, mental health and healthcare services. There was only some alignment between these and the NIHR funding themes. Other factors, such as age and race, also determined individual health priorities. The diversity and reach of the current project were limited, however this is something we hope to improve in the future with more funding. We learned that tenants have varying degrees of mobility and technological abilities, requiring both online and in-person meetings.

Citation

Phillips, O. R., Mardell, D., Stephenson, K., Hussain, S., Burton, D., Bernard, B., Stevenson, S., & Morling, J. R. (2024). Bringing the voice of social housing tenants into shaping the health and care research agenda. Research Involvement and Engagement, 10, Article 85. https://doi.org/10.1186/s40900-024-00613-y

• Journal Article Type: Article
• Acceptance Date: Jul 17, 2024
• Online Publication Date: Aug 8, 2024
• Publication Date: Aug 8, 2024
• Deposit Date: Jul 17, 2024
• Publicly Available Date: Aug 8, 2024
• Journal: Research Involvement and Engagement
• Electronic ISSN: 2056-7529
• Publisher: Springer Verlag
• Peer Reviewed: Peer Reviewed
• Volume: 10
• Article Number: 85
• DOI: https://doi.org/10.1186/s40900-024-00613-y
• Keywords: Public and patient involvement, Health inequalities, Social housing, Research partnership, Public health, PPI
• Public URL: https://nottingham-repository.worktribe.com/output/37310842
• Publisher URL: https://researchinvolvement.biomedcentral.com/articles/10.1186/s40900-024-00613-y