Exploring participation after paediatric acquired brain injury

Keetley, Rachel; Westwater-Wood, Sarah; Manning, Joseph C

Abstract

This study aimed to explore the levels of participation in a UK sample of children and young people (CYP) with an acquired brain injury (ABI) at home, school and in the community. The purpose of this study was to assess the feasibility of undertaking research with this population with a cross-sectional study using the Child and Family Follow-Up Survey (CFFS). The CFFS was distributed to parents/carers of 134 CYP with ABI (CYP-ABI) who received neuro-rehabilitation from 2014 to 2016. Access and recruitment was problematic resulting in a low response rate (4%). Widespread restrictions in participation were reported by 4 out of the 5 respondents with community structured events/activities and educational activities being the most restricted. Factors impacting on participation were cognitive-based and movement skills, family stress and lack of support/encouragement in the community. Study results provide information pertaining to the feasibility of undertaking research with this population whilst also highlighting the restrictions to participation experienced by CYP-ABI more than two years after injury. Abstract This study aimed to explore the levels of participation in a UK sample of children and young

Citation

Keetley, R., Westwater-Wood, S., & Manning, J. C. (2021). Exploring participation after paediatric acquired brain injury. Journal of Child Health Care, 25(1), 81-92. https://doi.org/10.1177/1367493520905673

• Journal Article Type: Article
• Acceptance Date: Jan 13, 2020
• Online Publication Date: Feb 18, 2020
• Publication Date: Mar 1, 2021
• Deposit Date: Mar 30, 2020
• Publicly Available Date: Mar 30, 2020
• Journal: Journal of Child Health Care
• Print ISSN: 1367-4935
• Electronic ISSN: 1741-2889
• Publisher: SAGE Publications
• Peer Reviewed: Peer Reviewed
• Volume: 25
• Issue: 1
• Pages: 81-92
• DOI: https://doi.org/10.1177/1367493520905673
• Keywords: Pediatrics, Perinatology, and Child Health; Pediatrics
• Public URL: https://nottingham-repository.worktribe.com/output/3716927
• Publisher URL: https://journals.sagepub.com/doi/abs/10.1177/1367493520905673?journalCode=chca
• Additional Information: Copyright © 2020 by Association of British Pediatric Nurses, SAGE Publications