Engagement barriers and service inequities in the NHS Breast Screening Programme: Views from British-Pakistani women

Woof, Victoria G; Ruane, Helen; Ulph, Fiona; French, David P; Qureshi, Nadeem; Khan, Nasaim; Evans, D Gareth R; Donnelly, Louise S

Abstract

Objectives: Previous research has largely attempted to explore breast screening experiences of South Asian women by combining opinions from Pakistani, Bangladeshi and Indian women. This research often fails to reach the most underserved sub-groups of this population, with socioeconomic status not routinely reported and English fluency being a participation requirement. With uptake low amongst British-Pakistani women, this study explores the experiences these women encounter when accessing the NHS Breast Screening Programme.

Setting: Participants were from East Lancashire, UK.

Methods: Nineteen one-to-one semi-structured interviews were carried out with British-Pakistani women. Fourteen interviews were conducted via an interpreter.

Results: Data were analysed using thematic analysis. Three themes were identified: ‘Absence of autonomy in screening and healthcare access’ describes how currently the screening service does not facilitate confidentiality or independence. Access requires third-party intervention, with language barriers preventing self-expression. ‘Appraisal of information sources’ makes distinctions between community and NHS communication. Whereas community communication was invaluable, NHS materials were deemed inaccessible due to translation incongruences and incomprehensible terminology. ‘Personal suppositions of breast screening’ explores the subjective issues associated with disengagement, including, the cultural misalignment of the service and perceiving screening as a symptomatic service.

Conclusions: British-Pakistani women face some unique challenges when accessing breast screening. To promote uptake, the service needs to address the translation of screening materials and optimise upon community networks to disseminate knowledge, including knowledge of the screening environment within the context of culture to promote informed choice about attendance.

Citation

Woof, V. G., Ruane, H., Ulph, F., French, D. P., Qureshi, N., Khan, N., …Donnelly, L. S. (2020). Engagement barriers and service inequities in the NHS Breast Screening Programme: Views from British-Pakistani women. Journal of Medical Screening, 27(3), 130-137. https://doi.org/10.1177/0969141319887405

• Journal Article Type: Article
• Acceptance Date: Oct 18, 2019
• Online Publication Date: Dec 2, 2019
• Publication Date: Sep 1, 2020
• Deposit Date: Oct 21, 2019
• Publicly Available Date: Jan 15, 2020
• Journal: Journal of Medical Screening
• Print ISSN: 0969-1413
• Electronic ISSN: 1475-5793
• Publisher: SAGE Publications
• Peer Reviewed: Peer Reviewed
• Volume: 27
• Issue: 3
• Pages: 130-137
• DOI: https://doi.org/10.1177/0969141319887405
• Keywords: Breast screening, Underserved populations, Barriers, Inequity, Experiences.
• Public URL: https://nottingham-repository.worktribe.com/output/2890522
• Publisher URL: https://journals.sagepub.com/doi/10.1177/0969141319887405