Adapted suicide safety plans to address self-harm, suicidal ideation, and suicide behaviours in autistic adults: protocol for a pilot randomised controlled trial

Rodgers, Jacqui; Goodwin, Jane; Nielsen, Emma; Bhattarai, Nawaraj; Heslop, Phil; Kharatikoopaei, Ehsan; O’Connor, Rory C.; Ogundimu, Emmanuel; Ramsay, Sheena E.; Steele, Katie; Townsend, Ellen; Vale, Luke; Walton, Emily; Wilson, Colin; Cassidy, Sarah

Abstract

Background: Suicide prevention is a national priority for the UK government. Autistic people are at greater risk of experiencing self-harm and suicidal thoughts and behaviours than the general population. Safety plans are widely used in suicide prevention but have not yet been designed with and for autistic people. We developed the first safety plan specifically targeting suicidality in autistic adults: the Autism Adapted Safety Plan (AASP). It consists of a prioritised list of hierarchical steps that can be used prior to or during a crisis to mitigate risk of self-harm and suicidal behaviour. This is a pilot study that aims to assess the feasibility and acceptability of the AASPs and the research processes, including the response rates, potential barriers and reach of AASPs, methods of recruitment, what comprises usual care, and economic evaluation methods/tools.

Methods: This is an external pilot randomised controlled trial of a suicide prevention tool aimed at mitigating the risk of self-harm and suicidal behaviour in autistic adults: AASPs. Participants will be assessed at baseline and followed up 1 month and 6 months later. Assessments include questions about self-harm, suicidality, service use, and their experience of the AASP/taking part in the study. Autistic adults who have a clinical autism diagnosis and self-reported history of self-harm, suicidal thoughts, or suicidal behaviours within the last 6 months will be invited to take part in the study. Informed consent will be obtained. Participants will be recruited via community and third sector services (including community settings, autism charities, and mental health charities). They may also “self-refer” into the study through social media recruitment and word of mouth. Ninety participants will be randomised to either develop an AASP or receive their usual care in a 1:1 ratio.

Discussion: The present study will provide an evaluation of the suitability of the processes that would be undertaken in a larger definitive study, including recruitment, randomisation, methods, questionnaires, outcome measures, treatment, and follow-up assessments. Trial registration: ISRCTN70594445, Protocol v4: 8/2/22.

Citation

Rodgers, J., Goodwin, J., Nielsen, E., Bhattarai, N., Heslop, P., Kharatikoopaei, E., …Cassidy, S. (2023). Adapted suicide safety plans to address self-harm, suicidal ideation, and suicide behaviours in autistic adults: protocol for a pilot randomised controlled trial. Pilot and Feasibility Studies, 9, Article 31. https://doi.org/10.1186/s40814-023-01264-8

• Journal Article Type: Article
• Acceptance Date: Feb 14, 2023
• Online Publication Date: Feb 28, 2023
• Publication Date: Feb 28, 2023
• Deposit Date: May 12, 2023
• Publicly Available Date: May 16, 2023
• Journal: Pilot and Feasibility Studies
• Electronic ISSN: 2055-5784
• Peer Reviewed: Peer Reviewed
• Volume: 9
• Article Number: 31
• DOI: https://doi.org/10.1186/s40814-023-01264-8
• Keywords: Study Protocol, Autism, Self-harm, Suicide, Intervention, Safety plan, Pilot trial, Randomised control trial, Cost-effectiveness analysis
• Public URL: https://nottingham-repository.worktribe.com/output/18223656
• Publisher URL: https://pilotfeasibilitystudies.biomedcentral.com/articles/10.1186/s40814-023-01264-8