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Dementia care model: promoting personhood through co-production

Bosco, Alessandro; Schneider, Justine; Coleston-Shields, Donna Maria; Orrell, Martin

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Authors

Alessandro Bosco

Justine Schneider

Donna Maria Coleston-Shields

MARTIN ORRELL M.ORRELL@NOTTINGHAM.AC.UK
Director - Institute of Mental Health



Abstract

© 2018 Elsevier B.V. Background: Despite robust evidence on its effectiveness, current approaches that aspire to person-centred care (PCC) frequently locate people with dementia as passive recipients rather than as active agents in the care process. We define active involvement in care as ‘co-production’. In order to investigate co-production, we set out to review the evidence concerning personhood and dignity in dementia care. Method: We adopted a meta-ethnographic approach to synthesise the predominantly- qualitative literature on personhood and dignity in dementia care using EMBASE, PsycINFO, and ASSIA databases. We also included relevant policy documents. Members of Patient and Public Involvement (PPI) group were consulted throughout. Results: A total of 14 empirical studies were subjected to content analysis. Three themes were identified: dignity and personhood, coping with dementia, and barriers to dignity in care. The findings suggest that positive strategies and coping mechanisms are associated with superior outcomes in relation to: sense of self, dignity and quality of care. The 22 policy documents yielded six themes pertaining to co-production: the part played by the person with dementia, family, environment, behaviour, governance and law, and health care partnership. Conclusion: Personhood in dementia care is enhanced through co-production, by actively participating in social, civic and political life. This is promoted through behavioural changes at the micro and macro levels of society, including providers of care being trained in co-producing care and policy makers creating opportunities with, rather than for people with dementia.

Journal Article Type Article
Acceptance Date Nov 6, 2018
Online Publication Date Nov 16, 2018
Publication Date Mar 31, 2019
Deposit Date Dec 6, 2018
Publicly Available Date Nov 17, 2019
Journal Archives of Gerontology and Geriatrics
Print ISSN 0167-4943
Electronic ISSN 1872-6976
Publisher Elsevier
Peer Reviewed Peer Reviewed
Volume 81
Pages 59-73
DOI https://doi.org/10.1016/j.archger.2018.11.003
Keywords Ageing; Gerontology; Health(social science); Geriatrics and Gerontology
Public URL https://nottingham-repository.worktribe.com/output/1371603
Publisher URL https://www.sciencedirect.com/science/article/pii/S0167494318302103?via%3Dihub
Additional Information This article is maintained by: Elsevier; Article Title: Dementia care model: Promoting personhood through co-production; Journal Title: Archives of Gerontology and Geriatrics; CrossRef DOI link to publisher maintained version: https://doi.org/10.1016/j.archger.2018.11.003; Content Type: article; Copyright: © 2018 Elsevier B.V. All rights reserved.

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