Getting back to life after stroke: co-designing a peer-led coaching intervention to enable stroke survivors to rebuild a meaningful life after stroke

Masteron-Algar, Patricia; Williams, Sion; Burton, Christopher R.; Arthur, Callum; Hoare, Zoe; Morrison, Val; Radford, Kathryn A.; Seddon, Diane; Elghenzai, Salah

Abstract

Purpose
Rebuilding one’s life after stroke is a key priority persistently identified by patients yet professionally led interventions have little impact. This co-design study constructs and tests a novel peer-led coaching intervention to improve post-stroke leisure and general social participation.
Methods
This study followed the principles of co-design by actively engaging and harnessing the knowledge of stroke survivors in order to develop and test a peer-lead coaching intervention. Phase 1 assessed function, mood and involvement in leisure and social activities six months following stroke (n=79). Phase 2 involved semi-structured, in-depth interviews with 18 stroke survivors and 10 family carers to explore experiences related to social and leisure participation. Phase 3 tested the co-designed peer-led coaching intervention. Data collected also included co-design feedback sessions and a training workshop with selected peer coaches and in addition, interviews with stroke survivors and their peer coaches at two time-points: following the training programme (n=5) and delivery of the intervention (n=2).
Results
A peer coaching intervention was successfully co-designed and tested combining the use of lay knowledge sociocognitive and self-regulatory theories with principles of transformational leadership theory. Both peers and stroke survivors reported having benefited at a personal level.
Conclusions
This study reports on an innovative community-based and peer-led intervention and its results have generated new evidence on how stroke survivors engage with and respond to peer coaching support. It further provides a theoretical platform for designing and implementing peer interventions. Hence, these results have the potential to inform the development of future peer coaching intervention not only for stroke rehabilitation but also for a wide range of chronic conditions.

Citation

Masteron-Algar, P., Williams, S., Burton, C. R., Arthur, C., Hoare, Z., Morrison, V., Radford, K. A., Seddon, D., & Elghenzai, S. (2018). Getting back to life after stroke: co-designing a peer-led coaching intervention to enable stroke survivors to rebuild a meaningful life after stroke. Disability and Rehabilitation, https://doi.org/10.1080/09638288.2018.1524521

• Journal Article Type: Article
• Acceptance Date: Sep 12, 2018
• Online Publication Date: Dec 3, 2018
• Publication Date: Dec 3, 2018
• Deposit Date: Sep 20, 2018
• Publicly Available Date: Dec 4, 2019
• Journal: Disability and Rehabilitation
• Print ISSN: 0963-8288
• Electronic ISSN: 1464-5165
• Publisher: Taylor and Francis
• Peer Reviewed: Peer Reviewed
• DOI: https://doi.org/10.1080/09638288.2018.1524521
• Keywords: Stroke, co-design, rehabilitation, peer coaching, social and leisure activities, community-based intervention
• Public URL: https://nottingham-repository.worktribe.com/output/1081635
• Publisher URL: https://www.tandfonline.com/doi/full/10.1080/09638288.2018.1524521
• Additional Information: Peer Review Statement: The publishing and review policy for this title is described in its Aims & Scope.; Aim & Scope: http://www.tandfonline.com/action/journalInformation?show=aimsScope&journalCode=idre20
• Contract Date: Sep 20, 2018