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Getting back to life after stroke: co-designing a peer-led coaching intervention to enable stroke survivors to rebuild a meaningful life after stroke

Masteron-Algar, Patricia; Williams, Sion; Burton, Christopher R.; Arthur, Callum; Hoare, Zoe; Morrison, Val; Radford, Kathryn A.; Seddon, Diane; Elghenzai, Salah


Patricia Masteron-Algar

Sion Williams

Christopher R. Burton

Callum Arthur

Zoe Hoare

Val Morrison

Diane Seddon

Salah Elghenzai


Rebuilding one’s life after stroke is a key priority persistently identified by patients yet professionally led interventions have little impact. This co-design study constructs and tests a novel peer-led coaching intervention to improve post-stroke leisure and general social participation.
This study followed the principles of co-design by actively engaging and harnessing the knowledge of stroke survivors in order to develop and test a peer-lead coaching intervention. Phase 1 assessed function, mood and involvement in leisure and social activities six months following stroke (n=79). Phase 2 involved semi-structured, in-depth interviews with 18 stroke survivors and 10 family carers to explore experiences related to social and leisure participation. Phase 3 tested the co-designed peer-led coaching intervention. Data collected also included co-design feedback sessions and a training workshop with selected peer coaches and in addition, interviews with stroke survivors and their peer coaches at two time-points: following the training programme (n=5) and delivery of the intervention (n=2).
A peer coaching intervention was successfully co-designed and tested combining the use of lay knowledge sociocognitive and self-regulatory theories with principles of transformational leadership theory. Both peers and stroke survivors reported having benefited at a personal level.
This study reports on an innovative community-based and peer-led intervention and its results have generated new evidence on how stroke survivors engage with and respond to peer coaching support. It further provides a theoretical platform for designing and implementing peer interventions. Hence, these results have the potential to inform the development of future peer coaching intervention not only for stroke rehabilitation but also for a wide range of chronic conditions.


Masteron-Algar, P., Williams, S., Burton, C. R., Arthur, C., Hoare, Z., Morrison, V., …Elghenzai, S. (2018). Getting back to life after stroke: co-designing a peer-led coaching intervention to enable stroke survivors to rebuild a meaningful life after stroke. Disability and Rehabilitation,

Journal Article Type Article
Acceptance Date Sep 12, 2018
Online Publication Date Dec 3, 2018
Publication Date Dec 3, 2018
Deposit Date Sep 20, 2018
Publicly Available Date Dec 4, 2019
Journal Disability and Rehabilitation
Print ISSN 0963-8288
Electronic ISSN 1464-5165
Publisher Taylor & Francis Open
Peer Reviewed Peer Reviewed
Keywords Stroke, co-design, rehabilitation, peer coaching, social and leisure activities, community-based intervention
Public URL
Publisher URL
Additional Information Peer Review Statement: The publishing and review policy for this title is described in its Aims & Scope.; Aim & Scope:


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