All Outputs (4)

Research knowledge transfer to improve the care and support of adolescents with sickle cell disease in Ghana (2022)
Journal Article
Poku, B. A., & Pilnick, A. (2022). Research knowledge transfer to improve the care and support of adolescents with sickle cell disease in Ghana. Health Expectations, https://doi.org/10.1111/hex.13573

Introduction: Effective transfer of research findings to key knowledge users, particularly in low- and middle-income countries, is not always achieved, despite being a shared priority among researchers, funders, healthcare and community stakeholders... Read More about Research knowledge transfer to improve the care and support of adolescents with sickle cell disease in Ghana.

The practice of pilot/feasibility studies in informing the conduct of HIV related clinical trials in sub-Saharan Africa: A scoping review (2022)
Journal Article
Nalubega, S., Osuwat, L. O., Agyeiwaa, P. B., Evans, C., & Matovu, J. B. (2022). The practice of pilot/feasibility studies in informing the conduct of HIV related clinical trials in sub-Saharan Africa: A scoping review. Contemporary Clinical Trials Communications, 29, Article 100959. https://doi.org/10.1016/j.conctc.2022.100959

Introduction: Pilot/feasibility studies represent a fundamental phase of the research process and play a vital role in the preliminary planning of a full size HIV clinical trial. Published HIV clinical trial protocols were reviewed to establish the e... Read More about The practice of pilot/feasibility studies in informing the conduct of HIV related clinical trials in sub-Saharan Africa: A scoping review.

Biographical accounts of the impact of fatigue in young people with sickle cell disease (2022)
Journal Article
Poku, B. A., & Pilnick, A. (2022). Biographical accounts of the impact of fatigue in young people with sickle cell disease. Sociology of Health and Illness, 44(6), 1027-1046. https://doi.org/10.1111/1467-9566.13477

Children and young people (CYP) with sickle cell disease (SCD) are a 'missing voice' in the debate on biography and sociology of chronic illness, meaning we know little about the social consequences of the illness for CYP. This paper examines the mea... Read More about Biographical accounts of the impact of fatigue in young people with sickle cell disease.

How a child's gender mediates maternal care and expectations in the fatigue experiences of adolescents with sickle cell disease (2022)
Journal Article
Poku, B. A., Pilnick, A., & Kirk, S. (2023). How a child's gender mediates maternal care and expectations in the fatigue experiences of adolescents with sickle cell disease. Journal of Family Studies, 29(4), 1606-1627. https://doi.org/10.1080/13229400.2022.2060851

Despite the chronicity and biopsychosocial significance of fatigue in sickle cell disease (SCD), it is rarely prioritized in understanding illness experiences and the social consequences of SCD for children, young people and their families. This stud... Read More about How a child's gender mediates maternal care and expectations in the fatigue experiences of adolescents with sickle cell disease.