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The development and validation of the LIMPRINT methodology

Moffatt, Christine J.; Murray, Susie; Mercier, Gregoire; Quere, Isabelle; Franks, Peter

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Authors

Christine J. Moffatt

Susie Murray

Gregoire Mercier

Isabelle Quere

Peter Franks



Abstract

The acronym Limprint stands for Lymphedema IMpact and PRevalence INTernational and was run under theauspices of the International Lymphedema Framework (ILF), a charity dedicated to improving provision of careglobally. The primary aim was to identify the number of people with chronic edema (chronic edema present for>3months and due to a range of underlying etiologies and associated risk factors) within diverse health services in nineparticipating countries and to determine its impact using validated methods. An international protocol and samplingframework, online data capture system, and standard operating procedures were adopted. An international consensuswas used to create a core data tool that covered 13 domains. Specialist data on demographics and disability, details ofswelling, wounds, cancer, and health-related quality of life were also available for sites. The study protocol wasdesigned to allow flexibility in the types of studies undertaken within complex health care systems. All cases wereconfirmed using the modified pitting test. Sensitivity and specificity for this method were determined in Japanese andEuropean populations. Following confirmation of a chronic edema case, Lymphologists defined whether it was aprimary of a secondary form. The study was designed to provide robust evidence that chronic edema is an importantand unrecognized public health problem in health services with significant morbidity. Without evidence of the sizeand complexity, it will remain considered a rare phenomenon and people affected will be denied access to appro-priate treatment that would allow them to have fulfilled and productive lives.

Citation

Moffatt, C. J., Murray, S., Mercier, G., Quere, I., & Franks, P. (2019). The development and validation of the LIMPRINT methodology. Lymphatic Research and Biology, 17(2), 127-134. https://doi.org/10.1089/lrb.2018.0081

Journal Article Type Article
Acceptance Date Jun 29, 2017
Online Publication Date Apr 22, 2019
Publication Date Apr 22, 2019
Deposit Date Sep 28, 2017
Publicly Available Date Apr 22, 2019
Journal Lymphatic Research and Biology
Print ISSN 1539-6851
Electronic ISSN 1557-8585
Publisher Mary Ann Liebert
Peer Reviewed Peer Reviewed
Volume 17
Issue 2
Pages 127-134
DOI https://doi.org/10.1089/lrb.2018.0081
Keywords Cardiology and Cardiovascular Medicine
Public URL https://nottingham-repository.worktribe.com/output/868709
Publisher URL https://www.liebertpub.com/doi/full/10.1089/lrb.2018.0081
Contract Date Sep 28, 2017

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