A scoping review of the needs of children and young people with acquired brain injuries and their families

Keetley, Rachel; Radford, Kathryn; Manning, Joseph C

Abstract

Understanding the needs of children and young people (CYP) with acquired brain injuries (ABI) isessential in delivering pathways of care and providing effective rehabilitation.
Aim: To identify relevant literature and key themes relating to the nature and extent of needs (met,unmet or unrecognized) of CYP with ABI and their families.
Method: Scoping review. Sixteen electronic bibliographic databases were searched using terms relating tochildren, brain injury and need. Papers were screened against eligibility criteria by two independentreviewers. No date limits were applied. Data were extracted by the lead author regarding the needs ofCYP with ABI and their families and thematic analysis conducted to identify the key themes. Methodologicalquality was not assessed.
Results: A total of 28 articles were identified including three systematic reviews, one scoping review,two practice recommendation articles, and 22 original research studies. Participants included CYP withABI, parents, siblings, and professionals. Four key themes were identified; CYP-related impairment needs,support needs, return to school and long-term aftercare.
Conclusion: CYP with ABI and their families report extensive needs, many of which are often unmet orunrecognized by those supporting the CYP. Needs transcend the health, social care, and education domains.

Citation

Keetley, R., Radford, K., & Manning, J. C. (2019). A scoping review of the needs of children and young people with acquired brain injuries and their families. Brain Injury, 33(9), 1117-1128. https://doi.org/10.1080/02699052.2019.1637542

• Journal Article Type: Article
• Acceptance Date: Jun 25, 2019
• Online Publication Date: Jul 7, 2019
• Publication Date: Jul 7, 2019
• Deposit Date: Jun 27, 2019
• Publicly Available Date: Jul 8, 2020
• Journal: Brain Injury
• Print ISSN: 0269-9052
• Electronic ISSN: 1362-301X
• Publisher: Taylor & Francis Open
• Peer Reviewed: Peer Reviewed
• Volume: 33
• Issue: 9
• Pages: 1117-1128
• DOI: https://doi.org/10.1080/02699052.2019.1637542
• Keywords: Arts and Humanities (miscellaneous); Developmental and Educational Psychology; Clinical Neurology
• Public URL: https://nottingham-repository.worktribe.com/output/2232887
• Publisher URL: https://www.tandfonline.com/doi/full/10.1080/02699052.2019.1637542
• Additional Information: Peer Review Statement: The publishing and review policy for this title is described in its Aims & Scope.; Aim & Scope: http://www.tandfonline.com/action/journalInformation?show=aimsScope&journalCode=ibij20; Received: 2018-11-07; Revised: 2019-05-11; Accepted: 2019-06-25; Published: 2019-07-07; ; This is an Accepted Manuscript of an article published by Taylor & Francis in Brain Injury on 07/07/2019, available online: http://www.tandfonline.com//10.1080/02699052.2019.1637542.