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Toward common data elements for international research in long-term care homes: advancing person-centered care

Corazzini, Kirsten N.; Anderson, Ruth A.; Bowers, Barbara J.; Chu, Charlene H.; Edvardsson, David; Fagertun, Anette; Gordon, Adam L.; Leung, Angela Y.M.; McGilton, Katherine S.; Meyer, Julienne E.; Siegel, Elena O.; Thompson, Roy; Wang, Jing; Wei, Sijia; Wu, Bei; Lepore, Michael J.

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Kirsten N. Corazzini

Ruth A. Anderson

Barbara J. Bowers

Charlene H. Chu

David Edvardsson

Anette Fagertun

Professor of The Care of Older People

Angela Y.M. Leung

Katherine S. McGilton

Julienne E. Meyer

Elena O. Siegel

Roy Thompson

Jing Wang

Sijia Wei

Bei Wu

Michael J. Lepore


To support person-centered, residential long-term care internationally, a consortium of researchers in medicine, nursing, behavioral, and social sciences from 21 geographically and economically diverse countries have launched the WE-THRIVE consortium to develop a common data infrastructure. WE-THRIVE aims to identify measurement domains that are internationally relevant, including in low-, middle-, and high-income countries, prioritize concepts to operationalize domains, and specify a set of data elements to measure concepts that can be used across studies for data sharing and comparisons. This article reports findings from consortium meetings at the 2016 meeting of the Gerontological Society of America and the 2017 meeting of the International Association of Gerontology and Geriatrics, to identify domains and prioritize concepts, following best practices to identify common data elements (CDEs) that were developed through the US National Institutes of Health/National Institute of Nursing Research's CDEs initiative. Four domains were identified, including organizational context, workforce and staffing, person-centered care, and care outcomes. Using a nominal group process, WE-THRIVE prioritized 21 concepts across the 4 domains. Several concepts showed similarity to existing measurement structures, whereas others differed. Conceptual similarity (convergence; eg, concepts in the care outcomes domain of functional level and harm-free care) provides further support of the critical foundational work in LTC measurement endorsed and implemented by regulatory bodies. Different concepts (divergence; eg, concepts in the person-centered care domain of knowing the person and what matters most to the person) highlights current gaps in measurement efforts and is consistent with WE-THRIVE's focus on supporting resilience and thriving for residents, family, and staff. In alignment with the World Health Organization's call for comparative measurement work for health systems change, WE-THRIVE's work to date highlights the benefits of engaging with diverse LTC researchers, including those in low-, middle-, and high-income countries, to develop a measurement infrastructure that integrates the aspirations of person-centered LTC.


Corazzini, K. N., Anderson, R. A., Bowers, B. J., Chu, C. H., Edvardsson, D., Fagertun, A., …Lepore, M. J. (2019). Toward common data elements for international research in long-term care homes: advancing person-centered care. Journal of the American Medical Directors Association, 20(5), 598-603.

Journal Article Type Article
Acceptance Date Jan 16, 2019
Online Publication Date Feb 28, 2019
Publication Date Feb 28, 2019
Deposit Date Mar 4, 2019
Publicly Available Date Feb 29, 2020
Journal Journal of the American Medical Directors Association
Print ISSN 1525-8610
Electronic ISSN 1538-9375
Publisher Elsevier
Peer Reviewed Peer Reviewed
Volume 20
Issue 5
Pages 598-603
Keywords Long-term care; Nursing homes; Common data element; Cross cultural comparison; Person-centered care
Public URL
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