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Parents’ and carers’ experiences of transition and aftercare following a child’s discharge from a paediatric intensive care unit to an in-patient ward setting: A qualitative systematic review

Suleman, Zainab; Evans, Catrin; Manning, Joseph

Parents’ and carers’ experiences of transition and aftercare following a child’s discharge from a paediatric intensive care unit to an in-patient ward setting: A qualitative systematic review Thumbnail


Authors

Zainab Suleman

Dr CATRIN EVANS CATRIN.EVANS@NOTTINGHAM.AC.UK
Professor of Evidence Based Healthcare

Joseph Manning



Abstract

Objectives: To explore parents’ experiences of transition and aftercare following their child’s discharge from a pediatric intensive care unit to an inpatient ward.
Methods: A qualitative systematic review was conducted. Electronic databases CINAHL, MEDLINE, EMBASE, Psych INFO, and ASSIA were searched for qualitative studies with no date limits imposed. Methodological quality was assessed using the JBI QARI standardised critical appraisal instrument. Data were extracted into a standardised data extraction tool. Findings were pooled using a meta-aggregative approach.
Results: Four studies were included in the final review that included a total of 95 participants. Fortynine findings were extracted and through an iterative process resulting in four synthesised findings being developed. These included: (1) Dynamic emotional response pre, peri and post-transfer; (2) Involvement in care absent but fundamental to functioning; (3) Changes in care delivery and environment provoking adverse emotions; and (4) Transition as a physical, emotional and social balancing act.
Conclusion: Transitioning from the pediatric intensive care unit to an in-patient ward can be a challenging time for parents, exposing them to a turbulent emotional and social status, and depleting their personal resources. Parents are aware of differences in the organisation and delivery of care between clinical areas which can compound the adversity experienced. Health professionals need to provide targeted support in order to mitigate these negative emotional, physical and social effects experienced.

Citation

Suleman, Z., Evans, C., & Manning, J. (2019). Parents’ and carers’ experiences of transition and aftercare following a child’s discharge from a paediatric intensive care unit to an in-patient ward setting: A qualitative systematic review. Intensive and Critical Care Nursing, 51, 35-44. https://doi.org/10.1016/j.iccn.2018.10.003

Journal Article Type Article
Acceptance Date Oct 28, 2018
Online Publication Date Nov 16, 2018
Publication Date 2019-04
Deposit Date Oct 29, 2018
Publicly Available Date Nov 17, 2019
Journal Intensive and Critical Care Nursing
Print ISSN 0964-3397
Publisher Elsevier
Peer Reviewed Peer Reviewed
Volume 51
Pages 35-44
DOI https://doi.org/10.1016/j.iccn.2018.10.003
Keywords Parents; Children; Paediatric intensive care; Transition; Meta-synthesis; Qualitative research; Aftercare; Discharge Inpatient ward
Public URL https://nottingham-repository.worktribe.com/output/1205193
Publisher URL https://www.sciencedirect.com/science/article/pii/S0964339718301666?via%3Dihub

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