Outputs (5)

Are dementia services and support organisations meeting the needs of Lesbian, Gay, Bisexual and Transgender (LGBT) caregivers of LGBT people living with dementia? A scoping review of the literature (2021)
Journal Article
Di Lorito, C., Bosco, A., Peel, E., Hinchliff, S., Dening, T., Calasanti, T., …Harwood, R. H. (2022). Are dementia services and support organisations meeting the needs of Lesbian, Gay, Bisexual and Transgender (LGBT) caregivers of LGBT people living with dementia? A scoping review of the literature. Aging and Mental Health, 26(10), 1912-1921. https://doi.org/10.1080/13607863.2021.2008870

Objectives. More than 60% of people with dementia live at home, where assistance is usually provided by informal caregivers. Research on the experiences of the Lesbian, Gay, Bisexual and Transgender (LGBT) caregivers is limited. This scoping review o... Read More about Are dementia services and support organisations meeting the needs of Lesbian, Gay, Bisexual and Transgender (LGBT) caregivers of LGBT people living with dementia? A scoping review of the literature.

Deconditioning in people living with dementia during the COVID-19 pandemic: qualitative study from the Promoting Activity, Independence and Stability in Early Dementia (PrAISED) process evaluation (2021)
Journal Article
Di Lorito, C., Masud, T., Gladman, J., Godfrey, M., Dunlop, M., Bosco, A., & Harwood, R. (2021). Deconditioning in people living with dementia during the COVID-19 pandemic: qualitative study from the Promoting Activity, Independence and Stability in Early Dementia (PrAISED) process evaluation. BMC Geriatrics, 21, 1-10. https://doi.org/10.1186/s12877-021-02451-z

Background: Restrictions introduced in response to the COVID-19 pandemic led to increased risk of deconditioning in the general population. No empirical evidence of this effect however has been gathered in people living with dementia. This study aims... Read More about Deconditioning in people living with dementia during the COVID-19 pandemic: qualitative study from the Promoting Activity, Independence and Stability in Early Dementia (PrAISED) process evaluation.

Avoiding repair, maintaining face: Responding to hard-to-interpret talk from people living with dementia in the acute hospital (2021)
Journal Article
Pilnick, A., O'Brien, R., Beeke, S., Goldberg, S., & Harwood, R. (2021). Avoiding repair, maintaining face: Responding to hard-to-interpret talk from people living with dementia in the acute hospital. Social Science and Medicine, 282, Article 114156. https://doi.org/10.1016/j.socscimed.2021.114156

People living with dementia (PLWD) are almost always admitted to the acute hospital for reasons unrelated to their dementia, finding themselves in the unfamiliar environment of a Health Care of Older Persons acute ward. The effect of this environment... Read More about Avoiding repair, maintaining face: Responding to hard-to-interpret talk from people living with dementia in the acute hospital.

Apathy Measures in Older Adults and People with Dementia: A Systematic Review of Measurement Properties Using the COSMIN Methodology (2021)
Journal Article
Burgon, C., Goldberg, S. E., Van Der Wardt, V., Brewin, C., & Harwood, R. H. (2021). Apathy Measures in Older Adults and People with Dementia: A Systematic Review of Measurement Properties Using the COSMIN Methodology. Dementia and Geriatric Cognitive Disorders, 50(2), 111-123. https://doi.org/10.1159/000515678

Background: Apathy is highly prevalent in dementia and is also seen in mild cognitive impairment and the general population. Apathy contributes to failure to undertake daily activities and can lead to health problems or crises. It is therefore import... Read More about Apathy Measures in Older Adults and People with Dementia: A Systematic Review of Measurement Properties Using the COSMIN Methodology.

Mixed-Methods Study on Caregiver Strain, Quality of Life, and Perceived Health (2021)
Journal Article
Di Lorito, C., Bosco, A., Godfrey, M., Dunlop, M., Lock, J., Pollock, K., Harwood, R. H., & van der Wardt, V. (2021). Mixed-Methods Study on Caregiver Strain, Quality of Life, and Perceived Health. Journal of Alzheimer's Disease, 80(2), 799-811. https://doi.org/10.3233/JAD-201257

Background:
Caring for someone with dementia is associated with negative and positive experiences. There is little evidence based on large datasets.

Objective:
To present data around the experience of caring for someone with dementia, to identif... Read More about Mixed-Methods Study on Caregiver Strain, Quality of Life, and Perceived Health.