Participation in medical decision-making across Europe: an international longitudinal multicenter study

B�r, Arlette; Hengartner, Michael P.; Kawohl, Wolfram; Konrad, Jana; Puschner, Bernd; Clarke, Eleanor; Slade, Mike; Valeria Del Vecchio, Valeria; Sampogna, Gaia; �gerh�zi, Anik�; S�veges, �gnes; Krogsgaard Bording, Malene; Munk-J�rgensen, Povl; R�ssler, Wulf

Abstract

Background: The purpose of this paper was to examine national differences in the desire to participate in decision-making of people with severe mental illness in six European countries.

Methods: The data was taken from a European longitudinal observational study (CEDAR; ISRCTN75841675). A sample of 514 patients with severe mental illness from the study centers in Ulm, Germany, London, England, Naples, Italy, Debrecen, Hungary, Aalborg, Denmark and Zurich, Switzerland were assessed as to desire to participate in medical decision-making. Associations between desire for participation in decision-making and center location were analyzed with generalized estimating equations.

Results: We found large cross-national differences in patients’ desire to participate in decision-making, with the center explaining 40% of total variance in the desire for participation (p

• Journal Article Type: Article
• Acceptance Date: Feb 15, 2016
• Online Publication Date: Apr 7, 2016
• Publication Date: May 1, 2016
• Deposit Date: Feb 22, 2016
• Publicly Available Date: Apr 7, 2016
• Journal: European Psychiatry
• Print ISSN: 0924-9338
• Electronic ISSN: 1778-3585
• Publisher: Elsevier
• Peer Reviewed: Peer Reviewed
• Volume: 35
• DOI: https://doi.org/10.1016/j.eurpsy.2016.02.001
• Keywords: Clinical decision-making, Patient participation, Multicenter study, Severe mental illness
• Public URL: https://nottingham-repository.worktribe.com/output/976661
• Publisher URL: http://www.sciencedirect.com/science/article/pii/S092493381602469X