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Consensus Definition of Misophonia: A Delphi Study

Swedo, Susan; Baguley, David M.; Denys, Damiaan; Dixon, Laura J.; Erfanian, Mercede; Fioretti, Alessandra; Jastreboff, Pawel J.; Kumar, Sukhbinder; Rosenthal, M. Zachary; Rouw, Romke; Schiller, Daniela; Simner, Julia; Storch, Eric A.; Taylor, Steven; Werff, Kathy R. Vander; Altimus, Cara M.; Raver, Sylvina M.

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Authors

Susan Swedo

Damiaan Denys

Laura J. Dixon

Mercede Erfanian

Alessandra Fioretti

Pawel J. Jastreboff

Sukhbinder Kumar

M. Zachary Rosenthal

Romke Rouw

Daniela Schiller

Julia Simner

Eric A. Storch

Steven Taylor

Kathy R. Vander Werff

Cara M. Altimus

Sylvina M. Raver



Abstract

Misophonia is a disorder of decreased tolerance to specific sounds or their associated stimuli that has been characterized using different language and methodologies. The absence of a common understanding or foundational definition of misophonia hinders progress in research to understand the disorder and develop effective treatments for individuals suffering from misophonia. From June 2020 through January 2021, the authors conducted a study to determine whether a committee of experts with diverse expertise related to misophonia could develop a consensus definition of misophonia. An expert committee used a modified Delphi method to evaluate candidate definitional statements that were identified through a systematic review of the published literature. Over four rounds of iterative voting, revision, and exclusion, the committee made decisions to include, exclude, or revise these statements in the definition based on the currently available scientific and clinical evidence. A definitional statement was included in the final definition only after reaching consensus at 80% or more of the committee agreeing with its premise and phrasing. The results of this rigorous consensus-building process were compiled into a final definition of misophonia that is presented here. This definition will serve as an important step to bring cohesion to the growing field of researchers and clinicians who seek to better understand and support individuals experiencing misophonia.

Citation

Swedo, S., Baguley, D. M., Denys, D., Dixon, L. J., Erfanian, M., Fioretti, A., …Raver, S. M. (2022). Consensus Definition of Misophonia: A Delphi Study. Frontiers in Neuroscience, 16, Article 841816. https://doi.org/10.3389/fnins.2022.841816

Journal Article Type Article
Acceptance Date Feb 7, 2022
Online Publication Date Mar 17, 2022
Publication Date Mar 17, 2022
Deposit Date Feb 16, 2022
Publicly Available Date Mar 18, 2022
Journal Frontiers in Neuroscience
Print ISSN 1662-4548
Electronic ISSN 1662-453X
Peer Reviewed Peer Reviewed
Volume 16
Article Number 841816
DOI https://doi.org/10.3389/fnins.2022.841816
Public URL https://nottingham-repository.worktribe.com/output/7470350
Publisher URL https://www.frontiersin.org/articles/10.3389/fnins.2022.841816/full

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