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A protocol for a systematic review of effective home support to people with dementia and their carers: components and impacts

Clarkson, Paul; Giebel, Clarissa M.; Larbey, Matthew; Roe, Brenda; Challis, David; Hughes, Jane; Jolley, David; Poland, Fiona; Russell, Ian; Orrell, Martin; Kapur, Narinder; Davies, Linda; Roberts, Chris; Tottie, Jean; Blyth, Reagan

Authors

Paul Clarkson

Clarissa M. Giebel

Matthew Larbey

Brenda Roe

Jane Hughes

David Jolley

Fiona Poland

Ian Russell

MARTIN ORRELL M.ORRELL@NOTTINGHAM.AC.UK
Director - Institute of Mental Health

Narinder Kapur

Linda Davies

Chris Roberts

Jean Tottie

Reagan Blyth



Abstract

© 2016 John Wiley & Sons Ltd. Aim: To review the evidence for home support approaches directed at tertiary prevention; ameliorating difficulties and enhancing well-being. Background: With population ageing dementia represents a significant care challenge with 60% of people with dementia living at home. However, little is known about existing forms of home support and their relative effectiveness. Design: A two-stage design: First, an overview of systematic reviews of psychosocial interventions for dementia to identify their components; second, a systematic review of the effectiveness of home support interventions to older people with dementia/their carers. Methods: We will search electronic databases using specific search terms with additional searches of other known studies. Data will be extracted by two reviewers according to pre-determined categories. An initial synthesis will elicit components of interventions from stage 1 and operationalize them in terms of specific techniques. These will then be used in synthesis of data in stage 2, to determine the extent to which each home support intervention relies on these components and distill evidence concerning outcomes. Studies from stage 2 are expected to be methodologically diverse; if so, a narrative approach to synthesis will be taken. Study findings will be explored with Patient, Public and Carer Involvement groups. Discussion: The review seeks to develop a theory of home support: how and why interventions may work; in what contexts; and for whom. We will identify effective home support approaches, informing policy-makers and establishing how they might be experienced by people with dementia and their carers.

Citation

Clarkson, P., Giebel, C. M., Larbey, M., Roe, B., Challis, D., Hughes, J., …Blyth, R. (2016). A protocol for a systematic review of effective home support to people with dementia and their carers: components and impacts. Journal of Advanced Nursing, 72(1), 186-196. https://doi.org/10.1111/jan.12737

Journal Article Type Article
Acceptance Date Jun 24, 2015
Online Publication Date Jul 28, 2015
Publication Date 2016-01
Deposit Date Jul 13, 2020
Journal Journal of Advanced Nursing
Print ISSN 0309-2402
Electronic ISSN 1365-2648
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 72
Issue 1
Pages 186-196
DOI https://doi.org/10.1111/jan.12737
Public URL https://nottingham-repository.worktribe.com/output/3751397
Publisher URL https://onlinelibrary.wiley.com/doi/full/10.1111/jan.12737
Additional Information Authors and Members of the HoSt?D (Home Support in Dementia) Programme Management Group.